Description
Genomics and Society; Ethical, Legal-Cultural, and Socioeconomic Implications is the first book to address the vast and thorny web of ELSI topics identified as core priorities of the NHGRI in 2011.The work addresses fundamental issues of biosociety and bioeconomy as the revolution in biology moves from research lab to healthcare system.Of particular interest to healthcare practitioners, bioethicists, and health economists, and of tangential interest to the gamut of applied social scientists investigating the societal impact of new medical paradigms, the work describes a myriad of issues around consent, confidentiality, rights, patenting, regulation, and legality in the new era of genomic medicine.- Addresses the vast and thorny web of ELSI topics identified as core priorities of the NHGRI in 2011- Presents the core fundamental issues of biosociety and bioeconomy as the revolution in biology moves from research lab to healthcare system- Describes a myriad of issues around consent, including confidentiality, rights, patenting, regulation, and more
Table of Contents
1. Preface: Genomics and Society – A Visionary Approach2. Personal Genomics and its Sociotechnical Transformations3. Genetics, Genomics and Society: Challenges and Choices4. Genomics and patient empowerment5. Ethical issues in Health and Social Genomics6. Health economic perspectives of genomics7. Legal aspects of health applications of genomics8. Genomics, Patents and Human Rights9. Teaching genetics and genomics for social and lay professionals10. Engaging and empowering public and professionals in genomics11. The 'life costs' of living with rare genetic diseases12. The bioeconomy, genomics and Society13. Socio-economic outcomes of genomics in the developing world14. Roles of genomics in addressing global food security15. The integration of genomics in the traditional Indian medical practice of Ayurveda17. Genomics and Traditional Chinese Medicine18. Human genetics and genomics and the socio-cultural beliefs and practices in South Africa19. Genomics and Spirituality20. The socio-demographic and economic correlates of consanguineous marriages in highly consanguineous populations21. The international law and regulation of medical genetics and genomics
