Full Description
Newborn screening samples are used to test more than 4 million infants each year for life-threatening diseases that are treatable if found at birth. These specimens also represent a potentially invaluable resource for public health and biomedical research. The IOM held a workshop to examine issues surrounding the use of residual specimens for translational research.
Contents
1 Front Matter; 2 1 Introduction; 3 2 Newborn Screening as a Public Health Program; 4 3 Uses of Residual Newborn Screening Samples in Research; 5 4 Concerns About the Use of Residual Newborn Screening Samples; 6 5 Review and Consent in the Use of Residual Newborn Screening Samples; 7 6 Parental and Public Education; 8 7 Workshop Overview and Wrap-Up; 9 References; 10 Appendix A: Workshop Agenda; 11 Appendix B: Speaker Biographical Sketches
