Great Ormond Street Hospital Textbook of Paediatric Bioethics and Law

著者名：Brierley, Joe (EDT)/Blackburn, Simon (EDT)/Archard, David (EDT)

OUP Oxford（2026/03/27発売）

• 言語：ENG
• eISBN：9780192634276

Description

Great Ormond Street Hospital Textbook of Paediatric Bioethics and Law is the first definitive reference to be produced by a world-leading children's hospital on the medical ethics and law applying to the care of children in a 21st century healthcare environment, exploring the challenges that children, their families, and those looking after them must face. Healthcare professionals involved in the care of children are faced with controversies about decision-making, including genomics, personalised medicine, gene therapy, transplants, and the transfer of life-sustaining treatments from the ICU to the home. In addition, although patient safety and transparency are improving, recurrent high-profile worldwide institutional and individual failures have led to the need for mechanisms of external accountability and assessment. Open deliberation about the ethical issues increasingly faced in paediatrics and child health, backed by knowledge of the relevant law and considered together with children and their families, is the best solution for all these concerns. This textbook enables better dialogue about the hard decisions made on a daily basis, considers how new and innovative treatments can be used in an ethical and lawful manner, and discusses when life sustaining therapy should be stopped, not started, or have limits set.

Table of Contents

• Introduction: Joe Brierley: Recent changes in Paediatrics and Child Health
• 01: Richard Huxtable: Respect or Protect Children and Young People? Healthcare Law in England and Wales
• 02: Dave Archard: Paediatric Bioethics: Philosophical Foundations
• 03: Vic Larcher and Joe Brierley: Decisions to limit treatment in children
• 04: Rev James Linthicum: Religion and Medical Ethics
• 05: Joe Brierley: Innovative therapy in child health
• 06: Flora Jago: Consent and Capacity
• 07: Gillian Colville: Psychological distress in staff in relation to difficult treatment decisions
• 08: Anne MacNiven: Moral Distress; what is it and why do we need to take it seriously?
• 09: Stephanie Nimmo: Parents’ participation
• 10: David Shaw and Joe Brierley: Ethical Issues in Paediatric Donation and Transplant
• 11: Hugo Wellesley: Key Ethical Issues in Paediatric Anaesthesia
• 12: Simon Blackburn Robert Wheeler: Key Ethical issues in Paediatric Surgery
• 13: Marina Easty and Riwa Meshaka: Key Ethical issues in Paediatric Radiology
• 14: Stephen Marks: Key Ethical Issues in Paediatric Nephrology
• 15: Darren Hargrave and Dr Elwira Szychot: Key Ethical Issues in Paediatric Oncology
• 16: Samiran Ray and Elaine Chan with Colin Wallis (reviewer): Key Ethical Issues in Paediatric Respiratory LTV, NIV
• 17: Sarah Aylett: Ethical issues in the management of children with disorders of consciousness (DOC)
• 18: Phil Marsden and Kirsty Abbas: The Psychosocial contribution to Bioethics in contemporary paediatrics
• 19: Helen O'Neill: The Ethical Issues of Genetic Testing in Children
• 20: Alison Steele: Legal and Ethical Aspects of Child Maltreatment
• 21: Sara Warriach and Simon Blackburn: Teaching Ethics to the Children’s Hospital’: Principles and Theories of an Ethics Education
• 22: Paolo De Coppi and Simon Blackburn: The Ethics of Surgery in 2025
• 23: Bobbie Farsides and Katherine Wright: The Ethics of Research with Children
• 24: Camilla Parker, Simon Wilkinson and Susan Walker: Law and Ethics in Paediatric Mental Health
• 25: Eleanor Updale: Televising Paediatric Healthcare
• 26: Simon Hannam and Zoe Smith: Ethics in the Neonatal Period
• 27: Samantha Potter and Timothy Thiruchelvam: Extracorporeal treatment/Bridging to transplant
• 28: Finella Craig, Sophie Bertaud, and Richard Hain: Ethics and law in Paediatric Palliative care
• 29: Emma Cave: Teenage decision making and the law in England and Wales
• 30: Helen Bedford and David Elliman: Controversies in Immunisation
• 31: Victoria Butler-Cole: Conflicts in child health
• 32: Vic Larcher and Joe Brierley: Gender dysphoria and puberty suppression
• 33: Ingrid Wolfe, Raeena Hirve, Rose-Marie Satherley, Sapfo Lignou: Advocacy for children
• 34: Sarah Boutros, Bryony Hopkinshaw, and Jonathan Broad and Sunanda Bhatia: Ethical considerations when caring for migrant children
• 35: Mary Lowth: GPs and the familial duty of care
• 36: Sam Ray and Joe Brierley: Ethics of the next pandemic
• 37: Fiona Paterson: Judging child health law
• 38: Vic Larcher and Joe Brierley: Second Medical Opinions; use of the Internet and Social Media
• 38: Joe Brierley and Hebe Weir: Conclusion