Description
Palliative care has become increasingly important across the spectrum of healthcare, and with it, the need for education and training of a broad range of medical practitioners not previously associated with this field of care. As part of the Integrating Palliative Care series, this volume on palliative care in nephrology guides readers through the core palliative knowledge and skills needed to deliver high value, high quality care for seriously ill patients with chronic and end-stage kidney disease. Chapters are written by a team of international leaders in kidney palliative care and are organized into sections exploring unmet supportive care needs, palliative care capacity, patient-centered care, enhanced support at the end of life, and more. Chapter topics are based on the Coalition for Supportive Care of Kidney Patients Pathways Project change package of 14 evidence-based best practices to improve the delivery of palliative care to patients with kidney disease. An overview of the future of palliative care nephrology with attention to needed policy changes rounds out the text. Palliative Care in Nephrology is an ideal resource for nephrologists, nurses, nurse practitioners, physician assistants, social workers, primary care clinicians, and other practitioners who wish to learn more about integrating individualized, patient-centered palliative care into treatment of their patients with kidney disease.
Table of Contents
Chapter 1 OverviewSection I Why We Need This Book: Unmet Supportive Care Needs of Patients with Kidney DiseaseChapter 2 Birth of a Benefit: Brief History of the ESRD ProgramNancy Armistead and Jeffrey A. PerlmutterChapter 3 Unmet Palliative Care Needs of Patients with Kidney Disease and ConsequencesKate Schueller and Dale LupuChapter 4 Models for Operationalizing Supportive Care in Kidney CareDale Lupu and Emma MurphySection II Supportive Care Capacity-Creating the Infrastructure to Provide Kidney Supportive CareChapter 5 Assessing Patients' Unmet Palliative Care Needs with Tools for AssessmentDr. Chandra Thomas and Amanda HalpinChapter 6 Primary Palliative Care Education for the Multidisciplinary Nephrology TeamJ. Pedro Teixeira and Sara A. CombsChapter 7 Establishing Relationships with Specialty Palliative Care for More Complex Patient NeedsKate Schueller and Joe RotellaChapter 8 Physician Wellness in Nephrology and Palliative CareSarah Ramer and Holly KoncickiSection III Patient-Centered Care-Values Guide CareChapter 9 The Shared Decision-Making Process as the Recommended Standard for Treatment Decisions in Kidney Disease and Requisite Communication Skills to Implement the ProcessErnest I. Mandel, Jane O. Schell and Robert A. CohenChapter 10 Advance care planning to elicit and respect patient values and preferencesJean L. Holley and J. April YasunagaChapter 11 Involving Family and Friends in Palliative Care for Persons with Kidney DiseaseElizabeth Anderson and Dave WhiteChapter 12 The Sstem to Iplement Avance Care Planning and Make Proxies, Advance Directives, and Portable Medical Orders Available and Actionable Across Care SettingsValerie Satkoske and Alvin H. MossSection IV Just Right Care-the Right Care to the Right Person at the Right timeChapter 13 The Role of Estimating and Communicating Prognosis in Kidney Supportive CareBjorg Thorsteinsdottir and Michael J. GermainChapter 14 Active Medical Management without Dialysis for Patients with Advanced Chronic Kidney DiseaseKelly LiChapter 15 Systematic Pain Assessment and ManagementSara N. DavisonChapter 16 Systematic Non-Pain Symptom Assessment and ManagementHana Yu and Jennifer S. SchererChapter 17 Systematic Psychosocial and Spiritual Needs Assessment and ManagementDaniel Cukor and Elissa KozlovChapter 18 Geriatric Nephrology Sendromes and Assessment and Management of Cognitive ImpairmentEdwina A. Brown and Osasuyi IyasereChapter 19 Palliative Considerations for the Patient with Acute Kidney Injury in the Intensive Care UnitTamara Rubenzik and Alvin MossSection V Throughout the Continuum-Enhanced Support at the End of LifeChapter 20 Coordination of Care and Care Transitions with Primary Care Clinicians, Specialty Palliative Care, and HospiceAreeba Jawed and Joe RotellaChapter 21 Palliative DialysisVanessa GrubbsChapter 22 Process of Dialysis Withdrawal for Patients Failing to Thrive on DialysisDaniel Lam and Rebecca J. SchmidtSection VI The Future of Palliative Care NephrologyChapter 23 Ethical issues in the supportive care of patients with advanced kidney diseaseCatherine R. Butler and Alvin H. MossChapter 24 Transforming practice to support person-centered care for patients with advanced kidney diseaseAnn M. O'Hare and Nancy Armistead
