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Description
This book addresses the unique healthcare needs of adults with chronic childhood illnesses. It presents a model of primary and secondary prevention for emerging adulthood—primary prevention in which all young adults are screened for high-risk behaviors and health needs and secondary prevention in which young adults with chronic childhood conditions are optimized through coordinated care, connections to community resources and social/family support.
This book is organized in five parts. Part I provides a detailed overview of the health care transition from pediatrics to adult medicine from both a policy and practice perspective. In Part II, the concept of emerging adulthood as a developmental period is explored and strategies for providing improved comprehensive care for this age group are discussed. Part III reviews specific chronic childhood conditions, such as attention-deficit/hyperactivity disorder, autism, cystic fibrosis, and diabetes mellitus, and offers clinical cases and summary reports that can be used as a quick guides to each condition. In Part IV, additional clinical considerations that are not necessarily condition-specific but are highly relevant to the care of young adults with chronic childhood conditions are examined. Part V describes the socio-legal issues involved in caring for this population.
Care of Adults with Chronic Childhood Conditions provides primary care providers with a new framework for the care of young adults and identifies opportunities to influence patient health outcomes over a life trajectory.
Table of Contents
Part I: Facilitating the Transition from Pediatric-Oriented to Adult-Oriented Primary Care.- Facilitating the Transition from Pediatric-Oriented to Adult-Oriented Primary Care.- Part II: Care of the Emerging Adult.- Care of the Emerging Adult.- Part III: Case-Based Examples of Management of the Young Adult with a Chronic Childhood Condition.- Attention-Deficit/Hyperactivity Disorder (ADHD).- Autism.- Cerebral Palsy.- Childhood and Adolescent Cancer Survivors.- Congenital Heart Disease.- Cystic Fibrosis.- Diabetes Mellitus (Type 1).- Down Syndrome.- Human Immunodeficiency Virus (HIV).- Inflammatory Bowel Disease.- Intellectual Disability.- Juvenile Idiopathic Arthritis.- Muscular Dystrophy.- Sickle Cell Disease.- Solid Organ Transplantation.- Spina Bifida.- Part IV: Other Clinical Considerations in the Care of Adults with Chronic Childhood Conditions.- Respiratory Care of Adults with Chronic Pulmonary Disease.- Nutritional Support.- Technology Dependence of the Nervous System.- Mobility Impairment.- Sexual and Reproductive Health.- Palliative Care.- Part V: Socio-Legal Aspects of Transition Care.- Assessing and Enhancing Psychosocial Functioning.- Adherence and Self-Management.- Education.- Employment.- Independent Living.- Decision-Making and Guardianship.- Access to Health Insurance.



