Full Description
The past 50 years have witnessed a transformation in the structure and function of families and households. The social and demographic catalysts for these changes - including but not limited to delayed marriage, the legalization of same-sex marriage, women's increased labor force participation, and declines in fertility and mortality - have further impacted norms around family life and the performance of formal and informal family roles. Despite these radical shifts, however, family and personal relationships are not well-represented in disability scholarship.
In the interest of expanding disability scholarship on families, this volume of Research in Social Science and Disability brings together research and theoretical perspectives that challenge and revise dominant perspectives on disability and the changing contexts of family and personal relationships. Rooted in a sociological and anti-ableist understanding of families which recognizes that families are not only shaped by individuals and individual relationships, chapters instead concentrate on the social contexts in which families exist to shift our focus away from individuals and allows us to engage with the social structures and status hierarchies that may privilege or undermine families and relationships to varying degrees.
Showcasing conceptually innovative work and cutting-edge methods related to the study of families, Disability and the Changing Contexts of Family and Personal Relationships presents not just a groundbreaking perspective on disability and family life, but also a new paradigm in disability scholarship.
Contents
Introduction. Introduction to the Volume: Toward an Understanding of Disability and the Changing Contexts of Family and Personal Relationships; Robyn Lewis Brown and Gabriele Ciciurkaite
Chapter 1. Disability, Family, Artistry: A Search for Balance and Access; Molly Joyce
PART 1. Vulnerability and Dependency
Chapter 2. From the Coleman Case to Disability Justice: An Examination of Discrimination by Association; Agnès Berthelot-Raffard
Chapter 3. Household Structure, Loneliness, and Food Insufficiency among Working-Age Adults with Disabilities during the COVID-19 Pandemic; Darcy L. Sullivan, Noelle K. Kurth, Jean P. Hall, and Kelsey Goddard
Chapter 4. The Commodification of Care: Precarious Custodial Relationships, Disability, and Settler-Colonialism; Nicole Ineese-Nash, Kathryn Underwood, Arlene Hache, and Patty Douglas
PART 2. Embodiment and Care
Chapter 5. Experiences, Interpretations, and Cultural Representations of Type 1 Diabetes and Their Effects on Individual Reproductive Trajectories; Justin T. Maietta
Chapter 6. Social Services and Support Structures for Adults with Autism Spectrum Disorder (ASD) and Their Parents' Quality of Life in Cyprus; Ioanna Georgiou and Stavros K. Parlalis
Chapter 7. The Role of Emotion in Caregiving Information Processing and Sensemaking for Parents of Children with Intellectual and Developmental Disabilities; Zachary P. Hart
Chapter 8. The Meaning of Disability and Family in American Medicine: A Content Analysis of the Intersection of Disability and Family in the AMA's Proceedings from 1846 to 2022; Kevin Hans Waitkuweit
PART 3. Identity and Creativity
Chapter 9. Family Centered Decision Making about Type 2 Diabetes Mellitus Among Koreans; Eun-Jeong Lee, Sang Qin, Arshiya A. Baig, Jennifer Dongha Lee, and Patrick W. Corrigan
Chapter 10. Beyond Complicity or Allyship: Towards A New Understanding of Caregivers; Judith Tröndle, Lisa Pfahl, and Boris Traue
Chapter 11. Sense and Sensuality: A Call for a Crip Dialogue Moving Beyond the Language of "Sexual Health" and "Healthy Sexualities"; Alan Santinele Martino
