Full Description
There are few things requiring more expertise, delicacy, and compassion than caring for an infant, child, or young adult with a life-limiting condition. Written by leading researchers, clinicians from relevant disciplines, family members, and advocates, this practical guide provides professionals involved in pediatric palliative and end-of-life care with comprehensive information in a single volume. Thoroughly updated and expanded, this edition includes chapters addressing the unique challenges facing children with HIV/AIDS and their families, care in home and ICU settings, difficult decision-making processes, and the importance of communication with the child and family, as well as completely new chapters on spiritual dimensions of care and educational and advocacy initiatives. Intended for primary care physicians, pediatric practitioners and specialists, home care and hospice personnel, pastoral counselors, and affected families, the book includes useful resource and reference material and practical, hands-on tips.
With contributions from an international group of expert educators, clinicians, and parents, this book takes a truly interdisciplinary approach to pediatric palliative care, presenting best practices, clear instruction, and the latest information and research for anyone involved in pediatric palliative and end-of-life care.
Contents
List of Contributors
Preface
Part I: Societal and Institutional Issues
Chapter 1. Epidemiology and Health Services Research
Chapter 2. Goals, Values, and Confl ict Resolution
Chapter 3. Barriers to Integrating Palliative Care and Potential Solutions
Chapter 4. Educational Initiatives
Chapter 5. The Art of Advocacy
Part II: The Cycle of Care
Chapter 6. Decision Making
Chapter 7. Communication Skills and Relational Abilities
Chapter 8. Psychosocial Needs of the Child and Family
Chapter 9. Spiritual Dimensions
Chapter 10. Holistic Management of Symptoms
Chapter 11. Bereavement
Chapter 12. The Other Side of Caring: Caregiver Suffering
Part III: Special Care Environments and Patient Populations
Chapter 13. Palliative Care in the Neonatal-Perinatal Period
Chapter 14. Palliative Care in the Pediatric Intensive Care Setting
Chapter 15. Palliative Care in the Home, School, and Community
Chapter 16. Palliative Care for the Child Who Has a Genetic Condition
Chapter 17. Integrating Palliative Care with HIV Care and Treatment
Chapter 18. Integrating Palliative Care with Pediatric Hematology/Oncology
Index
