Full Description
Nursing is an essential component of children's palliative care and palliative care is an essential aspect of nursing. Yet the complex inter-disciplinary nature of palliative care brings into sharp focus the work nurses undertake with others in delivering palliative care. This is, however, a book by nurses for nurses.
This comprehensive text presents the essential knowledge and skills required by nurses providing this invaluable care to a growing number of children. The chapters are mapped to the Children's Palliative Care Education and Training standards. These are endorsed by the International Children's Palliative Care Network, a major partner with the World Health Organization in the push to make children's palliative care a universal health right. In its three Parts, Children's Palliative Nursing Care covers public and universal care, core nursing and specialist care. The chapters can be read individually or cumulatively to move from engagement in public health and public understanding of palliative care through to delivering nursing care. Topics range from managing symptoms and end-of-life care, to education, research and issues of quality and leadership.
Uniquely each chapter has been written by a team of authors who come from both high-income and low-/middle-income countries. This makes this not just a book by nurses for nurses but a global book for global nursing practice.
Contents
Introduction and categorisation of children's palliative care needs and prevalence
Section 1: Public Health and Universal
1. Building and sustaining compassionate communities with children.
2. Beliefs, attitudes and values in children's palliative care.
3. Public perceptions and participation in children's palliative care: promoting positive cultures of communication.
Section 2: Core
4. Delivery of unwanted news: diagnosis and assessment of needs.
5. Self-care for nurses and nursing teams delivering and evaluating palliative care.
6. Play, education and children and carer coping living with palliative care needs.
7. Symptom management
8. End-of-life care and bereavement
Section 3 Specialist
9. Managing complexity.
10. Learning to design, deliver and evaluate children's palliative care education.
11. Leadership for improvement.
12. Evaluation and quality of care issues.
13. Research readiness, and leadership.
Appendix A: Table of LO for CPCET UK and Ireland Education Standard Framework (including mapping to chapters)
Appendix B: GoPaPAS Standards
