Unfitting StoriesTrauma illustrates how stories about ill health and suffering have been produced and received from a variety of perspectives. Bringing together the work of Canadian researchers, health professionals, and people with lived experiences of disease, disability, or trauma, it addresses central issues about authority in medical and personal narratives and the value of cross- or interdisciplinary research in understanding such experiences. The book considers the aesthetic dimensions of health-related stories with literary readings that look at how personal accounts of disease, disability, and trauma are crafted by writers and filmmakers into published works. Topics range from psychiatric hospitalization and aestheticizing cancer, to father-daughter incest in film. The collection also deals with the therapeutic or transformative effect of stories with essays about men, sport, and spinal cord injury; narrative teaching at L'Arche (a faith-based network of communities inclusive of people with developmental disabilities); and the construction of a "schizophrenic" identity. A final section examines the polemical functions of narrative, directing attention to the professional and political contexts within which stories are constructed and exchanged. Topics include ableist limits on self-narration; drug addiction and the disease model; and narratives of trauma and Aboriginal post-secondary students. Unfitting Stories is essential reading for researchers using narrative methods or materials, for teachers, students, and professionals working in the field of health services, and for concerned consumers of the health care system. It deals with practical problems relevant to policy-makers as well as theoretical issues of interest to specialists in bioethics, gender analysis, and narrative theory. Read the chapter "Social Trauma and Serial Autobiography: Healing and Beyond" by Bina Freiwald on the Concordia University Library Spectrum Research Repository website.
Table of Contents for Unfitting StoriesDisease, Disability, and Trauma edited by Valerie Raoul, Connie Canam, Angela D. Henderson, and Carla Paterson Acknowledgments and Dedication Introduction -- Narrative Frames Making Sense of Disease, Disability, and Trauma: Normative and Disruptive Stories | The Editors Interdisciplinarity and Postdisciplinarity in Health Research in Canada | Judy Z. Segal Part I -- Public Framing of Personal Narratives Introduction: Aesthetics, Authenticity, and Audience | The Editors Authorizing the Story: Lauren Slaters Memoirs of Mental Illness | Helen Buss Telling Trauma: Two Narratives of Psychiatric Hospitalization | Hilary Clark AIDS, Trauma, and Temporality: Paul Monette between Two Deaths | Lisa Diedrich Paper Thin: Agency and Anorexia in Genevieve Brisac's Petite | Barbara Havercroft Incomprehensible Density of Being: Aestheticizing Cancer | Ulrich Teucher Challenging Subjects: Bodies, Texts, and Legitimacy | Heidi Janz and | Julie Rak The Techtonics of Trauma: Father-Daughter Incest in Film | Gail Finney The Silvering Screen: Age and Trauma in Kurasawa's Rhapsody in August | Sally Chivers Part II -- Representing the Subject Introduction: Narrative in Qualitative Research and Therapeutics | The Editors Writing about Illness: Therapy or Testimony? | Anne Hunsaker Hawkins Constructing a ``Schizophrenic'' Identity | Barbara Schneider Space, Temporality and Subjectivity in a Narrative of Psychotic Experience | Lourdes Rodriguez Del Barrio Re-sounding Images: Outsiders in Blackridge's Sunnybrook | Joy James (Story-)Telling It like It Is: How Narratives Teach at L'Arche | Pamela Cushing Disrupting the Academic Self: Living with Lupus | Janet MacArthur Women Surviving Hemorrhagic Stroke: Narratives of Meaning | Sharon Dale Stone Men, Sport, and Spinal Cord Injury: Identity Dilemmas | Brett Smith and | Andrew C. Sparkes Part III -- The Larger Picture Introduction: Metanarrative Politics and Polemics | The Editors Disability Income: Narratives of Women with Multiple Sclerosis Lyn Jongbloed Narratives of Trauma and Aboriginal Postsecondary Students | Robert Procyk and | Christine Crowe Social Trauma and Serial Autobiography: Healing and Beyond | Bina Toledo Freiwald Reports from the Psych Wars | Richard Ingram Agoraphobia, Social Order, and Psychiatric Narrative | Shelley Z. Reuter The Disease Is Responsible? Drug Addiction and the Disease Model | Joanne Muzak Temporal Assumptions: Aging with Cystic Fibrosis | J. Daniel Schubert Ableist Limits on Self-Narration: The Concept of Post-Personhood | James Overboe Narrative Conclusions -- An Example of Cross-Disciplinary Analysis Margaret Edson's Play Wit: Death at the End or the End of Death? | Valerie Raoul, Connie Canam, Gloria Oneyoziri, Carla Paterson PostscriptBibliographyNER(01): GB IE