Full Description
Public Engagement and Ethical Communication in Brain Research, Innovation, and Health (Volume 9 of the book series 'Developments in Neuroethics and Bioethics'), provides a comprehensive overview of various understandings of neuroscience and (neuro)ethics communication across research, policy, and society. Featured topics include creative and participatory approaches to (neuro)ethics communication, the impact of narratives on public perception and science policy, the importance of responsible communication in neuroscience, and the dynamics between patient partners and researchers. The volume also addresses cross-cultural perspectives and focuses on comparative case studies of current emerging neuroscience research and neurotechnologies across countries.
Contents
Preface
Katherine Bassil and J. Lomax Boyd
Section I: The imperative for ethics communication
1. The Relevance of Responsible Conceptualization for Ethics Communication in Research and Innovation
Arleen Salles and Michele Farisco
2. Beyond Access and Participation: Communicative Justice and the Human Right to Science
Antonia Faustini
3. Rethinking the Narrative of the Insufficiency of Human Rights on the NeuroRights Discourse
Diego Borbón
Section II: Cross-cultural and national perspectives
4. Faith and Culture in Neuroethics: Implications for Ethical Communication
Amna Farooq
5. Neurohype Across Borders: How Media Narratives Shape Public Perception of Neurotechnology in English- and Spanish-Speaking Countries
Claudia González-Márquez and Eleanor Stamp
6. Communicating Ethically Sensitive Neuroscience in the Digital Age: the Case of Human Cerebral Organoids
Andrea Lavazza and Federica Saquella
Section III: Ethics communication in clinical research
7. Shared Responsibilities for Communicating Neuroscience Research: A Case Study for Spinal Cord Injury
Tanya A. Barretto, Salwa B. A. Malhas, Samantha P. Go and Judy Illes
8. Reflective Accounts from Collaborative Neuro-oncology Research: Perspectives from Patient Partners and Researchers
A. M. de Sain, M.E.G. ten Hoor-Suykerbuyk, P. Horstman, A. Janssens, L. Lieverse, C. Ruis, T. Seute and Margot Zomers
9. Ethical Challenges to the Responsible Communication of Individual Results from Observational Neurodegeneration Research
Deven K. Burks and Jane S. Paulsen
Section IV: Looking to the future
10. Preparedness Under Conditions of Polarization: Media Logics and the Public Positioning of Neuroethics
Alexander Sobieska
11. Foresight Scenarios as Communicative Instruments in Anticipatory Neuroethics
Katharina Kleine and Laura Bechthold
12. Draw Closer to Me: Participatory Visual Storytelling to Include Socio-Cultural Perspectives in Neuroethics and Policymaking
Marietjie Wilhelmina Maria Botes
