Full Description
Real-World Research to Improve Dementia Care: Embedding Pragmatic Trials of Non-Drug Interventions addresses the urgent need for effective care strategies for the over 50 million individuals living with Alzheimer's disease and related dementias. This insightful book introduces embedded pragmatic trials as a way to bridge the gap between clinical research and everyday practice, emphasizing collaboration among healthcare systems, researchers, and communities. Through a series of chapters, this book explores partnership strategies, ethical considerations, and the selection of meaningful outcome measures, all aimed at enhancing dementia care. The authors present real-world case studies that showcase successful interventions and innovative practices across various care settings. By highlighting both the challenges and solutions in dementia care, this book serves as a vital resource for healthcare professionals and researchers. Real-World Research to Improve Dementia Care: Embedding Pragmatic Trials of Non-Drug Interventions advocates for a compassionate approach that values the voices of individuals living with dementia, ultimately aiming to improve their quality of life.
Contents
1. Introduction to Embedded Pragmatic Trials to Improve Dementia Care
2. Engaging Partners to Improve Dementia Care
3. Building Research and Community Partnerships in Home Care and Hospice to Conduct Pragmatic Trials
4. Research Methods in Embedded Pragmatic Trials
5. Addressing Disparities and Inequities in Research to Improve Dementia Care
6. Selecting Measures that Matter to People Living with Dementia and Care Partners
7. Anticipating and Addressing Ethical and Regulatory Challenges in Embedded Pragmatic Trials Involving People Living with Dementia
8. Implementing Interventions to Improve Dementia Care: Understanding Mechanisms of Action in Embedded Pragmatic Clinical Trials in Home and Community Settings
9. Emerging Technologies: The Future of Dementia Research
10. Introduction to Case Studies
10a. Case Study 1: Music and Memory: A Pragmatic Trial for Nursing Home Residents With Alzheimer's Disease
10b. Case Study 2: Improving How People Living with Dementia are Selected for Care Coordination: Pragmatic Clinical Trial Embedded in an Accountable Care Organization
10c. Case Study 3: Overcoming Challenges to Recruiting Caregivers in Dementia Care Research
10d. Case Study 4: Implementation of Dementia-Friendly and Age-Friendly Health System Programs across Settings of Care
10e. Case Study 5: INTERACT: Large Scale Research Partnerships with Long-Term Care Communities
10f. Case Study 6: Strategies Associated with COVID-19 Vaccine Coverage among Nursing Home Staff
10g. Case Study 7: A Cluster-randomized Trial of Adjuvanted Versus Nonadjuvanted Trivalent Influenza Vaccine in 823 US Nursing Homes
10h. Case Study 8: Detection of Dementia in the Emergency Department
10i. Case Study 9: ALIGN: Case Study in De-prescribing for Dementia
10j. Case Study 10: The PROTECT Trial: Partnering with Nursing Homes to Reduce Infections
11. Resources to Design, Fund, and Conduct a Pragmatic Trial to Improve Dementia Care
12. Conclusion
