Full Description
Conceived in the era of eugenics as a solution to what was termed the "problem of the feeble-minded," state-operated institutions subjected people with intellectual and developmental disabilities to a life of compulsory incarceration. One of nearly 300 such facilities in the United States, Pennhurst State School and Hospital was initially hailed as a "model institution" but was later revealed to be a nightmare, where medical experimentation and physical and psychological abuse were rampant. At its peak, more than 3,500 residents were confined at Pennhurst, supervised by a staff of fewer than 600.
Using a blended narrative of essays and first-person accounts, this history of Pennhurst examines the institution from its founding during an age of Progressive reform to its present-day exploitation as a controversial Halloween attraction. In doing so, it traces a decades-long battle to reform the abhorrent school and hospital and reveals its role as a catalyst for the disability rights movement. Beginning in the 1950s, parent-advocates, social workers, and attorneys joined forces to challenge the dehumanizing conditions at Pennhurst. Their groundbreaking advocacy, accelerated in 1968 by the explosive televised exposé Suffer the Little Children, laid the foundation for lawsuits that transformed American jurisprudence and ended mass institutionalization in the United States. As a result, Pennhurst became a symbolic force in the disability civil rights movement in America and around the world.
Extensively researched and featuring the stories of survivors, parents, and advocates, this compelling history will appeal both to those with connections to Pennhurst and to anyone interested in the history of institutionalization and the disability rights movement.
Contents
List of Illustrations
Foreword
Dick and Ginny Thornburgh
Acknowledgments
Introduction
Dennis B. Downey and James W. Conroy
Part 1: Pennhurst in Time and Place
1. The Idea of Pennhurst: Eugenics and the Abandonment
of Hope
Dennis B. Downey
2. Living in a World Apart
J. Gregory Pirmann
3. The Veil of Secrecy: A Legacy of Exploitation and Abuse
James W. Conroy and Dennis B. Downey
Part 2: The Power of Advocacy
4. Suffer the Little Children: An Oral Remembrance
Bill Baldini
5. The Rise of Family and Organizational Advocacy
Janet Albert-Herman and Elizabeth Coppola
6. From PARC to Pennhurst: The Legal Argument for Equality
Judith A. Gran
7. The Rise of Self-Advocacy: A Personal Remembrance
Mark Friedman and Nancy K. Nowell
8. The Pennhurst Longitudinal Study and Public Policy: How We Learned That People Were Better Off
James W. Conroy
Part 3: A View to the Future
9. Touring the Ecology of the Abandoned
Heath Hofmeister and Chris Peecho Cadwalader
10. Preservation: A Case Study of Collective Conscience
Nathaniel Guest
11. The Final Indignity and the Dawning of Hope
Emily Smith Beitiks
Conclusion
Dennis B. Downey and James W. Conroy
Timeline of Pennhurst State School and Hospital
Suggestions for Further Reading
Contributors
Index
