患者自身が切り開いた医療革命：フィールド・ガイド Rebel Health : A Field Guide to the Patient-Led Revolution in Medical Care

Fox, Susannah

MIT Press（2025/03発売）

MIT Press（2025/03発売）

• 製本 Paperback:紙装版/ペーパーバック版／ページ数 200 p.
• 言語 ENG
• 商品コード 9780262553001
• DDC分類 610.696

Full Description

An action-oriented and radically hopeful field guide to the underground, patient-led revolution for better health and health care. Anyone who has fallen off the conveyer belt of mainstream health care and into the shadowy corners of illness knows what a dark place it is to land. Where is the infrastructure, the information, the guidance? What should you do next? In Rebel Health, Susannah Fox draws on twenty years of tracking the expert networks of patients, survivors, and caregivers who have come of age between the cracks of the health care system to offer a way forward. Covering everything from diabetes to ALS to Moebius Syndrome to chronic disease management, Fox taps into the wisdom of these individuals, learns their ways, and fuels the rebel alliance that is building up our collective capacity for better health. Rebel Health shows how the next wave of health innovation will come from the front lines of this patient-led revolution. Fox identifies and describes four archetypes of this revolution: seekers, networkers, solvers, and champions. Each chapter includes tips, such as picking a proxy to help you navigate the relevant online communities, or learning how to pitch new ideas to investors and partners or new treatments to the FDA. On a personal level, anyone who wants to navigate the health care maze faster will want to become a health rebel or recruit some to their team. On a systemic level, it is a competitive advantage for businesses, governments, and organizations to understand and leverage the power of connection among patients, survivors, and caregivers. Proactive, optimistic, and innovative, Rebel Health is a guiding light for anyone who wishes to join the health rebel alliance and become the hero of their own story.

Contents

Preface
Chapter 1: Seeker, Networker, Solver, Champion
Chapter 2: Seekers
Chapter 3: Tactics and Courage
Chapter 4: Networkers
Chapter 5: Visibility and Community
Chapter 6: Solvers: Treatment Innovation
Chapter 7: Solvers: Data Access
Chapter 8: Tools and Resources
Chapter 9: Champions
Chapter 10: Mission Alignment
Chapter 11: Get Started
Acknowledgements
Index