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Full Description
Winner, 2024 Choice Outstanding Academic Title
People with disabilities are underrepresented in STEM fields, and all too often, they face isolation and ableism in academia. Uncharted is a collection of powerful first-person stories by current and former scientists with disabilities or chronic conditions who have faced changes in their careers, including both successes and challenges, because of their health. It gives voice to common experiences that are frequently overlooked or left unspoken. These deeply personal accounts describe not only health challenges but also the joys, sorrows, humor, and wonder of science and scientists.
With a breadth of perspectives on being disabled or chronically ill, these stories highlight the intersectionality of minoritized identities with the disability community. Uncharted features essays by contributors who are d/Deaf, blind, neurodivergent, wheelchair users, have experienced traumatic brain injuries, have blood sugar disorders, have rare medical diagnoses, or have received psychiatric diagnoses, among many others. In many cases, the scientific field is not fully accessible to them, and they frankly describe struggling as well as thriving alongside their conditions.
This book serves as representation for scientists who have never felt comfortable disclosing their disability or who have never felt fully understood. The stories shared in this book seek to normalize medical conditions and disabilities in scientific culture, offering recommendations for how and why to improve access. Uncharted is vital and compelling reading for current and aspiring scientists who want to make their fields more inclusive and supportive for everyone.
Contents
Introduction: Charting the Course, by Skylar Bayer and Gabi Serrato Marks
Part I. Getting Underway
1. Rolling to Freedom, by Mpho Kgoadi
2. Regaining Control, by Jenn Pickering
3. Changing Tides: What Does It Mean to Be Blind?, by Maureen J. Hayden
4. Dear Cassy, by Sami Chen
5. Sea Legs: Working Around Motion Sickness, by Amanda Heidt
Part II. Between the Devil and the Deep Blue Sea
6. A Safe Space, by Daisy Shearer
7. When Fieldwork Doesn't Work: A Broken Bildungsroman, by Lauren A. White
8. Birds, Bees, and Anxieties, by Anonymous 1
9. My Brown Waterproof Boots, by Skylar Bayer
10. Hope Is My Anchor, by Furaha Asani
Part III. Rallying the Crew
11. The Place I Rest, by Alma C. Schrage
12. Sometimes It Doesn't Get Better, but That's OK, Too, by Alexander G. Steele
13. Christmas on Rangatira Island, by Sophie Fern
14. Living with a Rare Condition, by Sophie Okolo
15. Planning the Journey of a Lifetime, by Richard Wendell Mankin
Part IV. In the Heart of the Maelstrom
16. The Butt Balloon, by Anonymous 2
17. This Is Wallace Alfred Russel Simonis, by Juniper L. Simonis
18. The Day That Changed Everything, by Syreeta L. Nolan
19. Being the First and Only to Ask, by Amanda O'Brien
20. Lost in New Orleans, by Stephanie Schroeder
21. Ascending the Cinder Cone, by Divya M. Persaud
Part V. Reflections in the Water
22. Thinking Beyond the "Social Model of Disability," by Glyn Everett
23. Suffer in Silence or Leave, by Emma Tung Corcoran
24. (In)Visibly Eroding Bones, Bodies, and Landscapes, by Leehi Yona
25. The Abyss, by Katie Harazin
26. Navigating the Curve, by Sunshine Menezes
27. Tidy Columns, by Olivia Bernard
Part VI. I Am the Captain of My Ship
28. Broader Impacts, by Jennifer L. Piatek
29. Doo hwił hóyéeda . . . : A Lesson Lost in Translation . . . , by Taylor Francisco
30. The Ridge, by Gabi Serrato Marks
31. Who I Am, by Vincent Martin
32. The Best Place for My Hearing Aids Is on My Desk, by Michele Cooke
Conclusion: Aid to Navigation
Acknowledgments
Reflection and Discussion Questions
Further Reading and Resources
Glossary
Bibliography
About the Contributors
