Description
This handbook provides authoritative and cutting-edge analyses of various aspects of the rights and lives of disabled children around the world.
Taking the UN Convention on the Rights of Persons with Disabilities (CRPD) and the UN Convention of the Rights of the Child (CRC) as conceptual frameworks, this work appraises the current state of affairs concerning the rights of disabled children across different stages of childhood, different life domains, and different socio-cultural contexts.
The book is divided into four sections:
- Legislation and Policy
- Children’s Voice
- The Life Course in Childhood
- Life Domains in Childhood
Comprised of 37 newly commissioned chapters featuring analyses of UN documents and case studies from Australia, Brazil, Ethiopia, Hong Kong, Italy, the Netherlands, Norway, Papua New Guinea, Serbia, South Africa, Spain, Sweden, the United Kingdom, the United States, and Vanuatu, its multidisciplinary approach reflects the complexities of the lives of disabled children and the multifarious nature of the strategies needed to ensure their rights are upheld.
It will be of interest to researchers and students working in disability studies, education, allied health, law, philosophy, play studies, social policy, and the sociology of childhood. It will also be a valuable resource for professionals/practitioners, allowing them to consider future directions for ensuring that disabled children’s rights are realised and their well-being and dignity are assured.
Table of Contents
Preface
Gerard Quinn
Chapter One – Introduction: Children’s Rights and Disability
Anne-Marie Callus and Angharad E. Beckett
Section One – Legislation and Policy
Chapter Two – The Human Rights Model for Children with Disabilities
Jonas Ruškus
Vignette One – Meet Aurora
Aurora
Chapter Three – For the Full Incorporation of the Rights of Children, With or Without Disabilities, Into the Human Rights Model
Ignacio Campoy Cervera
Chapter Four – An Analysis of the UNCRPD Concluding Observations on the Rights of Children with Disabilities
Bronagh Byrne
Chapter Five – ‘They still need to listen more’: Working in partnership with disabled young researchers to inform and shape country submissions to the UN Committee on the Rights of Persons with Disabilities and UN Committee on the Rights of the Child
Anita Franklin and Zara Todd
Chapter Six – Human Rights Through the Eyes of Children with Disabilities
Elena Jenkin, Erin Wilson, Robert Campain, Kevin Murfitt and Matthew Clarke
Vignette Two – Meet Charlie
Charlie, with Lorna Hamilton
Chapter Seven – Developing the Right(s) Approach for Autism
Nick Hodge, Patty Douglas and Bronagh Byrne
Chapter Eight – Poverty, Deprivation and Disabled Children’s Right to Citizenship
Edgar Galea-Curmi
Chapter Nine – The Care Dependency Grant in South Africa: Challenges on the road to inclusive rights
Zara Trafford
Section Two – Children’s Voice
Chapter Ten – Children’s Rights, Arts-based Methods and Gramsci’s Common Sense: The possibilities of freedom
Francesca Bernardi
Chapter Eleven – Beyond the Spoken Word - Facilitating the disabled child’s voice through the Mosaic approach
Elvira Psaila
Vignette Three – Meet Liv
Liv, with Michael Rosenkratz
Chapter Twelve – Disabled Children’s Participation in Healthcare Decision-Making
Rados Keravica
Chapter Thirteen – Participation of Disabled Children in Health Guidelines Development
Kevin De Sabbata and Elena Syurina
Chapter Fourteen – The Right to an ‘Active Voice’ Without Words: Co-creating knowledge in special schools with Art Research Together
Karian Schuitema
Vignette Four – Meet Liam
Liam, with Jessica Wythe
Chapter Fifteen – The Rights of the Child When Symbolic Language is Out of Reach
Kristin Vindhol Evensen
Chapter Sixteen – Do All Children Have the Right to Express Views? Listening to ‘differently-voiced’ communicators
Lauran Doak
Section Three – The Life Course in Childhood
Chapter Seventeen – Babies with Disabilities and Their Entitlement to Imagined Hopeful Futures
Belinda Johnson
Chapter Eighteen – Is Disability a Justification to Undermine the Right to Life?
Begoña Rodríguez Díaz
Vignette Five – Meet Ane
Ane, with Heng-hao Chang and Meng-Hsuan Hsieh
Chapter Nineteen – Down Syndrome Abortion Bans: Law and ethics
Ryan H. Nelson and Jamie M. Crist
Chapter Twenty – Clash of Competing Rights in Surrogacy: Embryos, foetuses and children with a disability
JosAnn Cutajar
Chapter Twenty-one – Framing Does Matter: How health professionals can empower disabled children and their families
Claire Reinhardt and Amy Robasse
Chapter Twenty-two – From ‘Retarded’ Education to Authentic Life: A Personal Education Retrospective
Tammy Bachrach and Timothy Woods
Vignette Six – Meet Michaela
Michaela, with Clíona de Bhailís
Chapter Twenty-three – Design as an Agent of Children's Rights? Inclusive mobility design for children with disabilities
Cara Shaw and Farnaz Nickpour
Chapter Twenty-four – Assistive Technologies as Rights Enablers
Pedro Encarnação and Albert M. Cook
Chapter Twenty-five – ‘Look At Us…We’re Walking’: Parental advocacy v. a child’s privacy in the age of internet sharing
Stephanie Patterson and Kathleen McGoldrick
Chapter Twenty-six – An Open Exploration Around End-of-Life Journey’s for Children Facing Terminal Illness/Severe Disability
Caroline Ellison, Clara Chapman Van Duivenbode, Fiona Buchanan and Nicole Moulding
Section Four – Life Domains in Childhood
Chapter Twenty-seven – The Changing Landscape of Inclusive Education: A shift toward universal design for learning
Frederic Fovet
Vignette Seven – Meet Ġinġa
Ġinġa, with Georgette Bajada
Chapter Twenty-eight – ‘Lawfare’ and the Role of Civil Society on Promoting the Inclusive Education Public Policy in Brazil
Rodrigo Hübner Mendes and Luiza Andrade Corrêa
Chapter Twenty-nine – A Certain Kind of Freedom, a Certain Subject of Right. The disability dispositif of inclusion and the government of the disabled child in the Italian education system
Francesca Peruzzo
Chapter Thirty – Social Justice and Language Rights for Deaf Children
Tom Humphries, Gaurav Mathur, Donna Jo Napoli and Christian Rathmann
Chapter Thirty-one – Through the Eyes of Children with Disabilities: Recognising children’s agency in their play in inclusive playspaces
Jenene Burke and Lisa Stafford
Chapter Thirty-two – Disabled Children’s Access to Music. Music’s transformational potential and music therapy’s dis/enabling role in making music accessible
Maren Metell
Vignette Eight – Meet Euletta
Euletta and Begoña Rodriguez
Chapter Thirty-three – The Right to Grow Together: Exploring the roles of community agents in providing support for early adolescents with disabilities to make friends and join groups
Gemma Diaz Garolera, Maria Pallisera Díaz and Judit Fullana Noell
Chapter Thirty-four – Sex, Love, and Human Rights: Sexual rights for children and youth experiencing disability
Michelle Janzen
Chapter Thirty-five – Who is Worthy of Rights? An analysis of children living at the intersections of disability, citizenship and migration in the United States and Italy
Valentina Migliarini and Chelsea Stinson
Chapter Thirty-six – The Right to Safety: Promoting the authority of disabled children to tackle rights resistance
Sally Robinson and Jan Idle
Chapter Thirty-seven – Ceci n'est pas un dénouement | This is not a conclusion
Angharad E. Beckett and Anne-Marie Callus
