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Description
This manual enables individuals working in children’s palliative care (CPC) globally to learn through engaging real-world cases. The aim is to provide a clinical case-based resource that is globally relevant and accessible to those working in CPC. Drawing on case histories from around the world that reflect key issues and elements of CPC, it provides a practical approach grounded in experience. It addresses multidisciplinary care in the management of children and their families; discusses cases from an international perspective, and shares examples from a variety of countries, utilising cases across a range of ages and conditions, demonstrating holistic care. It represents the first case-based manual on global CPC and is endorsed and promoted by the International Children’s Palliative Care Network (ICPCN).
Children’s palliative care is a rapidly developing field, both in the UK and internationally. The provision of CPC varies considerably, with provision often being insufficient, and over 65% of countries having no recognised CPC service provision whatsoever. As such, while there are an estimated 21.6 million children who require palliative care, in many areas of the world, CPC is poor or non-existent, and children are treated like little adults without their distinctive needs being recognised or understood. There is also a dearth of literature on CPC, hence this clinical case-based manual fills a gap in the market, and is aimed at a global audience, making it a unique text in the field.
Table of Contents
Chapter 1. Introduction to children’s palliative care and serious health related suffering, along with how to use this case based manual.- Chapter 2. The need for and gaps in provision of children’s palliative care globally.- Chapter 3. Universal Health Coverage and Serious Health related Suffering (SHS).- Chapter 4. Children’s palliative care across a range of conditions, settings and resources.- Chapter 5. The importance of good holistic assessment.- Chapter 6. Communication to children and their families.- Chapter 7. Pain assessment and management.- Chapter 8. Respiratory care.- Chapter 9. Gastrointestinal symptoms.- Chapter 10. Fatigue.- Chapter 11. Nutritional support.- Chapter 12. Psychological care and distress.- Chapter 13. Spiritual care.- Chapter 14. Social and cultural support.- Chapter 15. End of life care.- Chapter 16. Supporting the family at the time of death.- Chapter 17. Anticipatory grief and bereavement support.- Chapter 18. Perinatal and neonatal palliative care.- Chapter 19. Supporting the adolescent and young adult.- Chapter 20. Managing ethical issues.- Chapter 21. Collaborative working and use of national, regional and international networks.- Chapter 22. Empowering the team through education.- Chapter 23. Integrating research into care.- Chapter 24. Conclusion.- Chapter 25. Index
