Description
The first volume in the "What Do I Do Now?: Palliative Care" series, Pediatric Palliative Care uses a case-based palliative care approach to cover common and important topics in the examination, investigation, and management of children with serious illness. Each chapter provides a discussion of the diagnosis, key points to remember, and selected references for further reading. The book addresses a wide range of topics, including the goals of care, symptom management, care for neonatal and adolescent populations, and the emotional, social, cultural and spiritual needs of ill children and their families. Written by authors from a variety of fields such as nursing, chaplaincy, social work, and psychology, this book is suited for pediatricians, palliative care and hospice providers, nurses, and allied health practitioners. Pediatric Palliative Care is an engaging collection of thought-provoking cases which clinicians can utilize when they encounter difficult patients. The volume is also a self-assessment tool that tests the reader's ability to answer the question, "What do I do now?"
Table of Contents
1. Whose Decision Is This?Elissa G Miller2. Why is everyone giving up on our son?Lindsay Ragsdale3. Will My Baby Learn to Walk?Elissa G Miller4. We are so glad she saw the beachLindsay Ragsdale5. Can you go change the family's mind?Toluwaslase Ajayi6. In the eye of the beholderElissa G Miller7. You Can't Tell Him That!Elissa G Miller8. "You can't stop the machines!"Elissa G Miller9. "I won't let you!"Elissa G Miller10. Time to stopElissa G Miller11. "Is she dying?"Elissa G Miller12. Stuck on Life SupportElissa G Miller13. How do we go back to work now?Lindsay Ragsdale14. Always putting my needs lastLindsay Ragsdale15. My Stomach HurtsDavid Flemig16. No access and still in painLindsay Ragsdale17. My skin feels like it is on fireLindsay Ragsdale18. The Withdrawn ChildRicki Carroll and Carly Levy19. She Won't Stop VomitingCarly Levy and Mindy Dickerman20. Can't catch my breathJuliana H. O'Brien21. Why isn't she looking at me?Natalie Jacobowski22. The Lack of MovementBillie Winegard23. Teenage "Bleh"Dominic Moore and Colleen Marty24. A Sad Side Effect of CancerLaura Rose Musheno25. My patient is twitching, could it be itching?Alexis Morvant and Emma Jones26. Is my baby feeling hungry?Lindsay Ragsdale27. Saying hello and goodbyeLindsay Ragsdale28. I feel my baby moving, how is she incompatible with life?Lindsay Ragsdale29. A moment becomes a memoryLindsay Ragsdale30. Tiny fingers, tiny toesLindsay Ragsdale31. A case of refusing to agreeKelstan Ellis and Jennifer Linebarger32. I just want to feel normal!Jami Gross-Toalson and Jennifer Linebarger33. I need a refill.Elissa G Miller34. "They're taking away her health insurance!"Cory Ellen Nourie35. The Unexpected QuestionAmelia Hayes36. A winding pathMeghan L. Marsac37. Why is She So Distressed?Daniel Waechter Webb and Megan J. Thorvilson38. Maximizing the time leftKeith Pasichow
