Description
Informal caregivers - family members, friends, and other loved ones - are an essential, uncompensated and significantly burdened extension of the healthcare team. Rapid advances in cancer care, including new drugs and immunotherapies and more sophisticated diagnostic tools, have markedly improved the ability to medically extend lives and enhance survival. As patients are living longer, with today's shorter hospital stays and shift towards increased outpatient care, however, the demands placed on all caregivers and their needs have substantially increased.Cancer Caregivers reveals the field of Psycho-Oncology's exploration of the depth of complexities of caregiving experiences and identifies the vast expanses left to be understood. This text describes the characteristics and experiences of cancer caregivers based on their life stage, relationship to the patient, and ethnic group membership, as well as patients' disease and treatment type. It highlights the significant progress in research focused on the development and dissemination of psychosocial interventions for cancer caregivers, and includes in-depth case studies to illustrate their delivery and application. The text also explores the provision of support to caregivers in the community and the legal and ethical concerns faced by caregivers throughout the caregiving process. Cancer Caregivers offers both fundamental and practical information and is the essential resource for all healthcare professionals who work with patients and families facing cancer.
Table of Contents
AcknowledgementsForwardBy Ruth McCorklePrefaceSection 1 - Describing the Population(1) Who are Informal Cancer Caregivers?Erin E. Kent, PhD, Margaret Longacre, PhD, Wen-Ying Sylvia Chou, PhD, and Michelle A. Mollica, PhD(2) The Burden of Cancer CaregiversBarbara Given, PhD and Charles Given, PhD(3) The Unique Experience of Caregivers Based on their Life Stage and Relationship to the PatientKristen Litzelman, PhD(4) Burden among Caregivers of Patients with Unique Sites of Cancer and/or Treatment and Comorbid PsychopathologyMaria Kryzo-Lacomb, PhD, Tamryn Gray, PhD, Margaret Bevans, PhD, Login George, PhD, and Bill Breitbart, MD(5) Sociocultural Investigation of Cancer CaregivingPatricia B. Pedreira, BS, Hannah-Rose Mitchell, MPH, Amanda Ting, BS, and Youngmee Kim, PhD(6) Measurement of Caregiver Burden - State of the Science and Future DirectionsLaurie Anderson, MD, Laura C. Polacek, BA, and KimbersonTanco, MDSection 2 - Addressing the Needs of Cancer Caregivers: Empirically Supported Treatments(7) Psychoeducational Interventions for Cancer Family CaregiversJ. Nicholas Dionne-Odom, PhD, RN, ACHPN, Marie A. Bakitas, DNSc, APRN, FAAN and Betty Ferrell, PhD, MA, FAAN, FPCN, CHPN(8) FOCUS: A Psychoeducational Program for Cancer Patients and Their Family CaregiversLaurel Northouse PhD, RN, FAAN, Clayton Shuman PhD, RN, Moira Visovatti PhD, RN, Bonnie Dockham LMSW, and Marita Titler PhD, RN, FAAN(9) Cognitive Behavioral Therapy (CBT) for Informal Cancer CaregiversJamie M. Jacobs, PhD, Lara Traeger, PhD, Emily A. Walsh, BA, and Joseph A. Greer, PhD(10) Problem-Solving Based InterventionsArthur M Nezu, PhD, DHL, ABPP, Christine Maguth Nezu, PhD, ABPP, and Lauren B. Johnson, EdM(11) Family TherapiesTammy A. Schuler, PhD, David W. Kissane, MD, and I. Zaider, PhDSection 3 - Addressing the Needs of Cancer Caregivers: Adaptations of Empirically Supported Treatments(12) CBT for Insomnia for CaregiversKelly M. Shaffer, PhD, Patricia Carter, PhD, RN, CNS, Sheila N. Garland, PhD, and Allison J. Applebaum, PhD(13) Emotion Regulation Therapy for Cancer Caregivers: Targeting Mechanisms of DistressAliza A. Panjwani, MA, Mia S. O'Toole, PhD,Allison J. Applebaum, PhD, David M. Fresco, PhD, and Douglas S. Menin, PhD(14) Meaning-Centered Psychotherapy for Cancer Caregivers (MCP-C)Allison Applebaum, PhDSection 4 - Delivery of Support to Caregivers in the Community(15) The Cancer Support Community: A Person-Centered Model of Evidence-Based Cancer Caregiver SupportJoanne S. Buzaglo, PhD, Alexandra K. Zaleta, PhD, Margaret L. Longacre, PhD, and Mitch Golant, PhD(16) American Cancer Society's Delivery of Support to Caregivers in the CommunityRachel S. Cannady, BS and Katherine Sharpe, MTS(17) CancerCare - A Psychosocial Oncology Support OrganizationSarah K. Kelly, MSW, LCSW and William Goeren, LCSW-R, OSW-C, ACSWSection 5 - Future Directions(18) Important Legal Concerns Faced by Informal Cancer CaregiversDebra Wolf, JD and Cristina Pejoves Gorman, JD(19) Conclusions and Future DirectionsAllison Applebaum, PhD
