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Full Description
This book addresses the ethical and political questions flowing from the vastly increased possibilities to manipulate the genetic properties of organisms, including human beings. Due to the great complexity of the scientific fields involved, these questions are framed and answered mostly by scientific experts. But the new technological possibilities and social practices connected with genetic manipulation intrude into domains that for a long time have been the provenance of religious and secular worldviews and touch upon deep-seated convictions and emotions. Moreover they are strongly influenced by economic and political interests. As a consequence, questions of scientific truth and technical control are getting more and more mixed up with questions regarding values and interests. Against this background, this book starts from the premise that neither clinging to the idea of value-neutral, disinterested science, nor the complete abandonment of this idea in favour of postmodern relativism will be of much help here. Instead the different contributions to this book explore the idea of a 'lingua democratica' for the life sciences and sketch the contours of this notion by focusing on a broad range of conceptual and practical issues in the field of genomics.
Contents
Harry Kunneman and Peter Derkx: Introduction
Complexity Theory, Social Constructionism and Hermeneutics
Paul Cilliers: A Crisis of Knowledge: Complexity, Understanding and the Problem of Responsible Action
Erica Haimes: The Contributions of Social Constructionism to the Study of the Ethical, Social and Political Aspects of the Life Sciences
Cees Pieters: Engineering, Humanistics and the Lingua Democratica: on Cross-Disciplinary Communications between 'Strange Bedfellows'
Harry Kunneman: Ethical Complexity, Hermeneutics and Mode 3 Knowledge
Ethics and Worldviews
Cor van der Weele: Morality and Genomics: Which Comes First? Towards Cooperative Inquiry
Andries De Smet, Sigrid Sterckx and Julian Cockbain: The Lack of Access to Medicines and the Health Impact Fund Scheme
Fernando Suárez Müller: Human Rights and Transhumanism: is a Humanist Transhumanism Possible?
Tatjana Kochetkova: The Spiritual Dimension of Human Enhancement: Remarks concerning the Discussion about Immortality
Peter Derkx: Worldviews, Genomics and Enhanced Human Lifespan
Corporations, Governments and Democracy
Alle Bruggink: The Influence of Government and Industry on Technological Research in the Netherlands: a Personal Experience
Anders Nordgren: Consumer Genomics Companies and Their Appeal to Empowerment
Michiel Korthals: Fundamental Uncertainty as an Issue for Deliberative Democracy
Guido Ruivenkamp and Joost Jongerden: From Prescription to Reconstruction: Opportunities for Subpolitical Choices in Biotechnological and Genomics Research
Marli Huijer: Storytelling as a Way to Enrich Democratic Discussion: The Dutch Debate on Embryo Selection for Hereditary Breast Cancer
About the Authors
Index
