Full Description
This special topic issue of 'Public Health Genomics' contains contributions discussing the subject in-depth. 'Public Health Genomics' is a well-respected, international peer-reviewed journal in Genetics. Special topic issues are included in the subscription.
Contents
Editorial; Meeting the Current Challenges of Governing Biobanks Responsibly: Dabrock, P.; Consent and Research Governance in Biobanks: Evidence from Focus Groups with Medical Researchers: Whitley, E.A.; Kanellopoulou, N.; Kaye, J.; Securing the Data Economy: Translating Privacy and Enacting Security in the Development of DataSHIELD: Murtagh, M.J.; Demir, I.; Jenkings, K.N.; Wallace, S.E.; Murtagh, B.; Boniol, M.; Bota, M.; Laflamme, P.; Boffetta, P.; Ferretti, V.; Burton, P.R.; IT Solutions for Privacy Protection in Biobanking: Eder, J.; Gottweis, H.; Zatloukal, K.; The Necessity of Broad Consent and Complementary Regulations for the Protection of Personal Data in Biobanks: What Can We Learn from the German Case?: Taupitz, J.; Weigel, J.; The Privacy-Reciprocity Connection in Biobanking: Comparing German with UK Strategies: Hobbs, A.; Starkbaum, J.; Gottweis, U.; Wichmann, H.E.; Gottweis, H.; Differentiating and Evaluating Common Good and Public Good: Making Implicit Assumptions Explicit in the Contexts of Consent and Duty to Participate: Bialobrzeski, A.; Ried, J.; Dabrock, P.; From Protection of Privacy to Control of Data Streams: A Focus Group Study on Biobanks in the Information Society: Snell, K.; Starkbaum, J.; Lauss, G.; Vermeer, A.; Helen, I.; Using Genomic Data to Make Indirect (and Unauthorized) Estimates of Disease Risk: Nyholt, D.R.; Author and Subject Index.
