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Full Description
This extensively revised and updated Open Access book offers a comprehensive guide to involving patients in health technology assessment (HTA). Defining patient involvement as research into patient aspects (patients' experiences, preferences, perspectives, needs) and patient participation in HTA (individual HTAs, methods, processes, governance and policy) it includes detailed explanations of methodologies and approaches, as well as case studies.
The book begins by introducing HTA and considering the ethics of patient involvement. It then defines the complementary strands of research and participation before providing chapters on key methods including: qualitative evidence synthesis, patient preference studies, ethnographic fieldwork, social media analysis using AI, natural language processing and deep learning, patient-led collaborative research to inform economic modelling, and evaluation of patient involvement. It concludes with carefully selected case studies highlighting specific approaches and considerations among HTA bodies on five continents, health technology developers and patient organisations.
With cohesive contributions from more than 120 authors from a variety of disciplines around the globe and most chapters including patient authors, Patient Involvement in Health Technology Assessment concludes with urgent calls to action for this field which has rapidly gained momentum in the past decade. As both a practical manual and academic text, it serves as a source of inspiration for policymakers, practitioners, researchers, patient advocates and postgraduate students around the world who seek to improve HTA by taking account of patients' knowledge, experiences, needs and preferences.
Contents
I-Conceptualisation.- Health Technology Assessment.- Justice as an Ethical Justification for Patient Involvement.- Research into Patient Aspects.- Patient Participation in HTA.- Discussion: Patients' Role, Representation and Epistemic Justice in HTA.- II-Methodologies.- Patient-led Collaboration for HTA Tools and Evidence Development: Project HERCULES.- Extracting Data on Patient Perspectives from Social Media.- Discussion: The Evolving Science of Patient Involvement.- Patient Preference Research to Inform HTA.- Ethnographic Fieldwork.- Qualitative Evidence Synthesis.- Evaluation of Patient Involvement in HTA.- Discussion: Making Sense of Patients' Perspectives, Experiences, and Involvement in HTA..- III-Jurisdictional Approaches and Stakeholder Views.- Australia: Co-Designing Enhanced HTA Processes with Patients.- Belgium: Partnering with Patients for HTA Research.- Czechia: Patient Involvement in HTA.- England: Continuously Improving Processes for Patient Involvement Throughout HTA.- European Union: Patient Involvement Model in HTA Under the European HTA Regulation.- Germany: Patient Involvement in HTA.- Latin America and the Caribbean: Evolving Approaches to Involving Patients in HTA.- The Philippines: Systematising Patient Participation in HTA.- Republic of Korea: Tackling Misinformation with Patients in HTA.- Singapore: From Stakeholder Mapping to Continuously Improving Patient Participation in HTA.- Spain (REDETS): Collaborating on Methodologies for Patient Involvement in HTA.- Taiwan: Patient Participation in HTA.- USA: Patient Involvement at the Institute for Clinical and Economic Review.- Wales: Developing Bespoke Approaches to Patient Involvement in HTA.- Perspectives from Low- and Middle-Income Countries on Patient Involvement in HTA.- Discussion: Perspective of an HTA Appraisal Committee Chair in France.- The Evolving Role Patient Organisations in HTA.- Patient Involvement Throughout the Medicine Life Cycle: A Pharmaceutical Industries' Perspective.- Patient Involvement in the Life Cycle of Medical Technology Development.- Patient Involvement in HTA - The Journey Continues.
