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Full Description
This book tells true and poignant stories from both sides of the physician-patient/parent relationship and provides a unique glimpse into how parents and physicians think, feel, and interact. The stories are grouped under four sections: Hope, Compassion, Communication, and Trust. Each section includes stories contributed by parents from all across the United States and by pediatricians practicing at many of the best children's hospitals throughout the country. The parents tell of interactions with physicians that had a significant impact on them and their child and offer context and insight that promote empathy and reflection. The physicians tell of interactions with patients and families that served as learning moments in their career and promote the humanization of medicine and show there is more to a physician beyond their scientific knowledge and white coat. The stories are edited by Barry P. Markovitz - a pediatrician specializing in critical care medicine who has beenin practice for more than 20 years and by Ann F. Schrooten - the parent of a child born with a chronic complex condition who has more than 15 years of experience interacting with pediatric subspecialists and other healthcare professionals who cared for her son. The editors have written commentaries to the stories to provide an independent perspective on the events and messages conveyed and to encourage reflection, inquiry, and discussion.
In addition to being a valuable resource for pediatricians, pediatric subspecialists, nurses and other healthcare professionals, the book will also appeal to families of children living with complex medical conditions because it shares physician encounters and behaviors many have experienced in the care of their own children. By giving a voice to both parents and physicians, the goal is to create a bridge to better understanding that can improve communication, minimize conflicts, and foster trust and compassion among physicians,patients, and families.
Contents
I. Compassion.- What Matters At The End.- I Didn't Have To Fix It.- No Wrong Decisions.- Reuniting Families.- Leading With Compassion.- Minute By Minute, Step By Step.- Seek Permission First.- A Sacred Relationship.- Kids Like These.- A Smile Worth Saving.- II. Trust.- Team Harlie.- Best Laid Plans.- If We Are Paying Attention.- Full Disclosure.- The Photograph.- Learning Together.- Altered Path.- The Befores And The Afters.- Not Everyone Is Born A Superhero.- Beyond The Numbers.- Shared Experience.- Tying The Threads Into A Bond.- III. Communication.- A Voice That Doesn't Use Words.- Brave The Difficult Conversation.- A Roadmap.- Teamwork.- Re-Learning To Listen.- Words Matter.- Trust Their Voice.- Knowing Your Family.- Advocacy Is Not Anger.- Where Is The Doctor?.- Failure toCommunicate.- When A Patient and Family Forever Change Your World.- Respect: A Two-Way Street.- IV. Hope.- Persistence Of Hope: A Story In Two Acts.- Can I Offer You Advice?.- The Life Of The Party.- Every Single Second Worth It.- Partners In Hope.- Answers For Rosie.- We Treat Souls, Not Just Bodies.- Never Give Up.- The Sliver Of Sky.- The Many Voices of Hope.- Mothers Club.- Glossary.
