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Full Description
There has been a major development in social science research: it is now being carried out by people who had previously only been seen as its subjects. At the forefront are people with experience as mental health service users/survivors who have taken a lead in pioneering a new approach to research which is now commanding increasing attention and respect. "This is Survivor Research" for the first time details this important new approach to research. Written and edited by leaders in the field, the book explores the theory and practice of survivor research, provides practical examples of survivor research and offers guidance for people wishing to carry out such research themselves. This is a groundbreaking book for policy makers, researchers, educators, students, service users and practitioners in the mental health field and beyond, many of whom must address user involvement in their research.
Contents
Foreword Mary O'Hagan SECTION 1 INTRODUCTION AND BACKGROUND 1 Introduction; Diana Rose and Peter Beresford 2 Background; Peter Beresford and Diana Rose 3 So what is survivor research; Angela Sweeney SECTION 2 PHILOSOPHY AND UNDERPINNINGS OF SURVIVOR RESEARCH 4 Survivor-produced knowledge Diana Rose 5 Developing a social model of madness and distress to underpin survivor research; Peter Beresford SECTION 3 THE PRACTICE OF RESEARCH 6 Survivor research: Ethics approval and ethical practice; Alison Faulkner and Debbie Tallis 7 Identity issues in mental health research; Karan Essien 8 First-hand experiences of different approaches to collaborative research; Carey Ostrer and Brigid Morris 9 Literature reviews: An example of making traditional research methods user focused Pete Fleischmann 10 Influencing change: Outcomes from User-Focused Monitoring inpatient research in Bristol in 2002 Rosie Davies 11 Influencing change: User or researcher? Elitism in research; Heather Straughan 12 A rough guide to getting started; Alison Faulkner SECTION 4 THE INSIDE STORY 13 From activist to researcher and part way back; Jan Wallcraft 14 'Getting better - in theory': Creating, then using, a Foucauldian mental health service user/survivor theoretical standpoint in my own journey of 'recovery'; David G Armes 15 Project accounts: * A survivor-led evaluation of a survivor-led crisis service; Judy Beckett * Empowerment under permit: Canterbury and District Mental Health Forum Service User Evaluation (SUE) project; Matt Sands * An evaluation of a mental health service in North East Scotland; Stuart Valentine * My experience of doing academic research to attain a research degree; Philip Hill * Research and evaluation in East Berkshire; Sue Goddard 16 Telling our truths, bringing about change: Being a survivor researcher; Tina Coldham and Jasna Russo * Turning the tables; Alison Faulkner * Mickey Mouse scans?; Angela Sweeney * Benefit of the doubt; Anne-Laure Donskoy * Challenging beliefs; Brigid Morris * We don't start off with the agenda tied up; Cath Roper * Being a survivor researcher helps me survive; David Webb * Not just someone who takes; Debbie Mayes * Having a double identity; Diana Rose * Working in a twilight zone; Heather Straughan * Talking back to power *Jasna Russo * Alchemy: A miraculous transformation or the means of achieving this; Keith Halsall * Banging against the brick wall; Mary Nettle * Shocking memories Pete Fleischmann * Survivor researcher: An holistic role; Peter Beresford * Not an academic in an ivory tower; Philip Hill * Missionary zeal; Ruth Sayers * The sick and the well?; Sarah Carr * On board the good ship Survivor Research; Tina Coldham
