Full Description
Inspired by the lived experiences of families raising autistic children, this book emerged from a recognized gap in the comprehensive understanding of Canadian parents' and family caregivers' experiences and perspectives.
Bringing together a multidisciplinary team of researchers, clinicians, educators, students, and family members, this book presents a critical review of the Canadian context by synthesizing research conducted with the caregivers of autistic children over the last twenty-five years. Structured in three sections, each chapter opens with a lived-experience narrative to centre caregiver voices and ground analysis in everyday realities. Drawing on both qualitative and quantitative research, it reveals the multidimensional nature of caregiving, and the emotional, logistical, and systemic challenges families face.
This book offers evidence-based insights for health and social care professionals, researchers, students, policymakers, and families committed to improving the quality of life and well-being for autistic individuals and their families.
Contents
Dedication
Contents
List of Figures
List of Tables
Preface
Acknowledgments
Part I: Introduction
Chapter 1: Understanding Autism and Supports within Canadian Systems of Care
Olaf Kraus de Camargo and Farah Ahmad
Chapter 2: Common Frameworks on Coping & Resilience in Parents of Autistic Children
Vivian Lee, Teresa Hedley, Adrienne Perry, Tian Kuan, and Jonathan A. Weiss
Part II: Review of Canadian Literature
Chapter 3: Methodology for Review
Farah Ahmad and Nasih Othman
Chapter 4: Multidimensional Caregiving: A Review of Qualitative Studies
Farah Ahmad and Nasih Othman
Chapter 5: Access to Services for Children on the Spectrum and Their Caregivers: A Review of Quantitative Studies
Elias Chaccour, Farah Ahmad, and Nasih Othman
Chapter 6: School Education in the Eyes of Parents as Caregivers of Children on the Spectrum: A Review of Qualitative and Quantitative Studies
Farah Ahmad and Azeezah Jafry
Chapter 7: Psychological Well-being of Caregivers of Children on the Spectrum: A Review of Quantitative Canadian Studies
Farah Ahmad, Elias Chaccour, Faisal Ali Mohamed, and Nasih Othman
Future Directions
Chapter 8: Future Directions Surrounding Caregivers and Children on the Spectrum
Farah Ahmad, Sukaina Dada, Mohammad S. Zubairi, and Tareq Khalaf
Contributors
