Full Description
Written by leading mental health professionals, this warm and accessible parenting book for children with chronic illnesses offers clear, practical guidance for all aspects of the journey. Recommended by professionals at the American Diabetes Association, Invisible Disabilities Association, the Crohn's Colitis Foundation, and other expert national and regional sources.
For all its joys, parenting is a complex job, and when your child has a chronic illness, the stress can feel overwhelming. When your child is diagnosed, you begin a parenting journey filled with strong emotions, difficult choices, confusing words, and interactions with numerous professionals and specialists.
You amp rsquo re focused on ensuring your child gets the best possible treatments for their symptoms, so it amp rsquo s easy to overlook or dismiss the impact the illness can have on your relationships and emotions. This book places your psychological well-being front and center, so you can be the best caregiver possible for your child.
Along with suggestions for making laughter and mindfulness part of your daily self-care routine, it offers guidance for choosing the right therapist for your family, should extra support be needed. Every family amp rsquo s journey with chronic illness is unique, but you don amp rsquo t have to go it alone. This book received the Silver Medal for Parenting in the Independent Publishers Awards.
Contents
Acknowledgments
The Unexpected Journey Begins
Chapter . Navigating Your Feelings
Chapter 2. Staying Healthy on the Journey
Chapter 3. Getting What You Need on the Road to the New Normal
Chapter 4. Communicating With Your Child: It's a Two-Way Street
Chapter 5. Your Co-Pilots: Other Parents and Parent Figures in Your Child amp rsquo s Life
Chapter . Getting Everyone on Board: Siblings and Other Family Members
Chapter 7. Mechanics of Working With the Medical Team
Chapter 8: Mechanics of Working With the School Team
Chapter 9: The Cone Zone: Setting Healthy Boundaries
Chapter . When Your Journey Includes Hospital Stays
Chapter . The Journey Through Death and Beyond
Chapter 2. Concluding Thoughts: Building Resilience on the Journey
Resources for Your Journey
Notes
About the Authors
