Full Description
Elgar Research Agendas outline the future of research in each area. Leading scholars are given the space to explore their subject in provocative ways and map out the potential directions of travel. They are relevant but also visionary.
This highly informative Research Agenda examines how lived experiences are understood and incorporated in disability policy. It explores various policymaking contexts, highlighting the opportunities and challenges that derive from centering lived experience.
Expert authors pair case studies from across Asia, Australia and North America with theoretical grounding to reorient policy thinking towards voices that have been traditionally excluded. Evaluating topics such as rural contexts, times of conflict and transport and health policy, chapters highlight how the voices of Indigenous populations, in particular, have been marginalised in policymaking. The authors powerfully demonstrate that lived expertise is a unique form of knowledge which should be valued and integral to all disability policy making and research.
This is a valuable resource for students and scholars of disability studies, sociology, and policy studies. Its insights into lived experience also make it prime readership for professionals and practitioners in the areas of social policy and social work.
Contents
Contents
1 Introduction: Lived experience and policy making 1
Jennifer Smith-Merry and Damian Mellifont
2 Centring disabled voices: Inclusion of lived experiences in
policy 8
Sze Hwee Jace Tay and Kuansong Victor Zhuang
3 Re-imagining policymaking with rural people with disability
in Australia 18
Claire Quilliam, Luke Wakely and Jodie Bailie
4 Navigating disability in times of conflict: The case of
disability policies in Pakistan 32
Farman Ali, Zia Ullah Akhunzada and Mandy Lau
5 The multi-layered, multi-faceted importance of the lived
experience in disability health policy 44
Dinesh Palipana and Gisselle Gallego
6 The role of lived experience and the right to participate
in the CRPD: The case of disability policymaking in
technocratic Singapore 56
Daryl W. J. Yang
7 Indonesia's digital disability inclusion: From regulation to
policymaking and practice 69
Muhammad Novsyaroni Umar, Galuh Fitri Amalia Susilo and
Muhammad Karim Amrullah
8 From experience to policy: The influence of lived
experience on disability transport policy in Sydney,
Australia 87
Miguel Loyola and Jennifer Kent
9 What is the problem with private supported boarding
houses? Resident perspectives on the Queensland
Parliamentary Inquiry 100
Elroy Dearn, Neil Turton-Lane and Matilda Alexander
10 The research agenda for assisted dying policy for
psychiatric disability 117
Sam Sam and Jennifer Smith-Merry
11 Decolonising the Indigenous disability sciences in Australia
and New Zealand 126
Jemma Chao, Alix Beckett, Sarah Veli-Gold and John Gilroy
12 The good, the bad and the ugly: Accommodations for
Indigenous Canadian civil servants with disabilities 145
John T. Ward, Kevin P. Morgan, Lexi (Giizhigokwe)
Nahwegiizhic and Annie Smith St-Georges
13 Radical disability disclosure: How to encourage an invisible
community to engage in disability policymaking 166
Téa Rundback
14 Co-producing knowledge to inform policy: A disabled
person's reflections on processes, learnings, strengths, and
challenges 175
Susan Wadsworth and Rachelle A. Martin
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