Full Description
Disfigurement: Understanding Visible Difference is a collection of essays which brings together an all-star cast of researchers, clinicians, advocates and activists around the world, many of whom have lived experience with disfigurement. Seeking to reduce stigma around disfigurement, they explore the experience of looking different including interventions to help with social integration, social media issues, and prejudice towards physical difference. The collection serves as a call for activism and offers a direction for future research.
This book responds to the three themes prevalent in the literature on disfigurement: (1) the psychosocial aspects of body image and identity, (2) interventions, and (3) representations of disfigurement. In section one, the book explores the psychosocial aspects of body image and identity among people with disfigurement. Section two looks at interventions, including those involving social media. And in response to this misrepresentation, section three offers the voices of folks who are helping to change public opinions through media and activism.
This book is invaluable reading for all clinicians, researchers, activists, people with disfigurement and those who care about them. Disfigurement: Understanding Visible Difference is a crucial resource for students of disability studies, social work, and health psychology.
Contents
Contents
Dedication and Acknowledgements
Contributor Bios
Introduction in Two Parts
Lise Deguire and Miriam Jaffe
Section 1: The Psychosocial Aspects of Body Image and Identity
Chapter 1
Confronting Embodied Ableism: Learning from Synkinesis
Faye Linda Wachs
Chapter 2
Acid Violence and Disfigurement: Lived Experiences of Women Survivors
Beenish Ambereen and Farhan Navid Yousaf
Chapter 3
"Those experiences while good also made me feel uncomfortable and broken": A Male's Perspective of Living with Facial Eye Disfigurement
Zali O'Dea and Jane Southcott
Interlude
Living Louder: Uncovering and Unlearning the Lessons of Rejection Stories
Jasmine "Jaz" Gray
Pretty Disability: A Collection of Essays from a Black Girl who has Contemplated her Beauty and Worth
Rasheera D. Dopson
Section 2: Interventions
Chapter 4
Psychosocial Interventions to Support People Affected by Visible Differences
Diana Harcourt, Maia Thornton, Pippa Tollow, Fabio Zucchelli and Alex Clarke
Chapter 5
Visible Difference and Social Media: Harnessing a Unique Tool to Increase Support and Reduce Stigma
Ella Guest, Abbi Mathews, and Amy Slater
Chapter 6
FaceIT@home: An Online Support Tool for Adults with Visible Differences
Alyson Norman
Interlude
Finding My Voice
Dina Zuckerberg
The Swan Fallacy
Sora Kasuga
Section 3: Representations of Disfigurement
Chapter 7
Challenging Down Syndrome Prejudices in Today's Media Landscape
Charlene Pell
Chapter 8
Facing up to *IT* is worth it; James Partridge Revisited
J. Michael Murphy
Chapter 9
The Stories that Need to be Told
Phyllida Swift
