Full Description
Efforts to apply ethical guidelines and regulations to vulnerable populations are often problematic. Consequently, health and social scientists sometimes shy away from the challenges of research, particularly when it means addressing value-laden social problems such as sexuality, drugs, and racism. Ethical Issues in Community-Based Research with Children and Youth is a collection of essays that describe the uniqueness of community-based research, outlining several of the ethical concerns that it engenders. The contributors examine such issues as the scope of informed consent to multiple stakeholders, determining competence to give consent in marginalized populations, and managing dual roles as participant researchers. The collection suggests that a more collaborative, ongoing, and discursive approach is needed by researchers and by ethical review boards to ensure that research on sensitive social problems with high risk populations is supported and also conducted with a clear understanding of the highest ethical standards possible.
Contents
Preface
Acknowledgments
Contributors
Part I: The Ecology of Informed Consent in Vulnerable Child and Youth Populations and First Nations
Community-Based Research with Vulnerable Populations: Challenges for Ethics and Research Guidelines BONNIE LEADBEATER, TED RIECKEN, CECILIA BENOIT, ELIZABETH BANISTER, CONRAD BRUNK, and KATHLEEN GLASS
Through the Community Looking Glass: Participant Consultation for Adolescent Risk Research 22
CELIA FISHER and JESSICA MASTY
At the Edge of Consent: Participatory Research with Student Filmmakers
TED RIECKEN and TERESA STRONG-WILSON
Part II: Longitudinal Samples: Protecting Privacy and Maintaining Consent
A Youth Population Health Survey
MIKAEL JANSSON, WAYNE MITIC, TRACEY HULTEN, and MANDEEP DHAMI
The Ethics of Peeking behind the Fence: Issues Related to Studying Children's Aggression and Victimization
AMY YUILE, DEBRA PEPLER, WENDY CRAIG, and JENNIFER CONNOLLY
Part III: Weighing Benefits and Preventing Harms
The Ecstasy and the Agony of Collecting Sociometric Data in Public School Classrooms: Challenges, Community Concerns, and Pragmatic Solutions
MARION K. UNDERWOOD, LARA MAYEUX, SCOTT RISSER, and BRIDGETTE HARPER
Ivory Tower Ethics: Potential Conflict between Community Organizations and Agents of the Tri-council
LORRIE SIPPOLA
Part IV: The Special Case of Research with Groups
Youth on the Margins: Qualitative Research with Adolescent Groups
ANNE MARSHALL and BLYTHE SHEPARD
Walking a Fine Line: Negotiating Dual Roles in a Study with Adolescent Girls
ELIZABETH BANISTER and KIM DALY
Part V: Child Protection Issues in Research with Vulnerable Children and Youth
Respect and Protect? Conducting Community-Academic Research with Street-Involved Youth
MIKAEL JANSSON and CECILIA BENOIT
Conducting Research in Child Maltreatment: Problems and Prospects
CHRISTINE WALSH and HARRIET MACMILLAN
The Study of Suicidality among Children and Youth: Preliminary Recommendations and Best Practices
TRACY VAILLANCOURT and VIOLETTA IGNESKI
Part VI: Summary and Recommendations for Ethical Guidelines, Research, and Training
Unique Roles, Unique Challenges: Graduate Students' Involvement in Community-Academic Research
JOSH SLATKOFF, RACHEL PHILLIPS, SARAH CORRIN, TAMARA ROZECK-ALLEN, and TERESA STRONG-WILSON
Stepping into Community-Based Research: Preparing Students to Meet New Ethics and Professional Challenges
MARLENE MORETTI, BONNIE LEADBEATER, and ANNE MARSHALL
Including Vulnerable Populations in Community-Based Research: New Directions for Ethics Guidelines and Ethics Research
BONNIE LEADBEATER and KATHLEEN GLASS
