Beyond the Grip of Craniosynostosis : An inside View of Life Touched by the Congenital Skull Deformity

Johnstun, Kase D.

McFarland & Co Inc（2015/02発売）

• 製本 Paperback:紙装版/ペーパーバック版／ページ数 244 p.
• 言語 ENG
• 商品コード 9780786475698
• DDC分類 616.710092

Full Description

Both a memoir and a medical study, this unique work explores the extensive and tragic reach of craniosynostosis, the premature fusing of the cranial sutures in infants. The author--born with craniosynostosis in 1975--documents his and his family's struggles, weaving his story into a broader view of this birth defect. Included are interviews with respected craniofacial surgeons, neurosurgeons and pediatric anesthesiologists, an explanation of the major types of craniosynostosis, and a summary of the modern medical history of cranial sutures, as well as ancient treatments dating to the time of Hippocrates.

The experiences of 11 American families affected by craniosynostosis are chronicled, demonstrating the uniqueness of each case and each treatment. Their stories illustrate the surgical techniques now being used to release cranial sutures, allowing the brain to grow naturally--though not every story ends this way.

Contents

Table of Contents

Acknowledgments

Foreword by Katie Mae Garner

Preface

Part One: Beginnings

1975

Out of the Chutes

Kinship

Part Two: The Rearview Mirror

Sutures

The Fever—Inside Anesthesia

Part Three: From Here to There and Back (Lambdoid Synostosis)

The Noose

The Plateau

Part Four: The Crown (Coronal Synostosis)

Intruder

Loosen

Part Five: The Bridge (Metopic Synostosis)

The Ridge

The Sound

The East River

Part Six: Fault Lines (Sagittal Synostosis)

The Plains

The Apparatus (Endoscopy and Helmet Therapy)

Scarred Detritus

The Corridor

The Great Salt Lake

Part Seven: The Mother, the Advocate and the Word "Cosmetic"

The Dream

No Montage

Scars

The Shave

Release

Bibliography

Index