Full Description
"An incisive study that illuminates the myriad complexities of chronic illness."—Kirkus Reviews (Starred Review)
"Movingly spotlights the struggles of chronically ill patients."—Publishers Weekly
A moving cultural history of disability—and a powerful call to action to change how our medical system and society supports those with complex chronic conditions
From lupus to Lyme, invisible illness is often dismissed by everyone but the sufferers. Why does the medical establishment continually insist that, when symptoms are hard to explain, they are probably just in your head?
Inspired by her work with long COVID patients, medical anthropologist Emily Mendenhall traces the story of complex chronic conditions to show why both research and practice fail so many. Mendenhall points out disconnects between the reality of chronic disease—which typically involves multiple intersecting problems resulting in unique, individualized illness—and the assumptions of medical providers, who behave as though chronic diseases have uniform effects for everyone. And while invisible illnesses have historically been associated with white middle-class women, being believed that you are sick is even more difficult for patients whose social identities and lived experiences may not align with dominant medical thought. Weaving together cultural history with intimate interviews, Invisible Illness upholds the experiences of those living with complex illness to expose the failures of the American healthcare system—and how we can do better.
Contents
Contents
A Note on Names
A Glossary of Conditions
Introduction
PART ONE: HISTORY
1. Hysteria Is an Old Story
2. The Case of Chronic Fatigue
3. Lyme Wars
4. Pain without Verifiability
PART TWO: POLITICS
5. Disabling Culture
6. The Rise of Patient Activism
7. Structural Silencing
8. Disability Consciousness
Conclusion
Acknowledgments
Notes
Bibliography
Index
