Full Description
Cardiothoracic Care for Children and Young People is a comprehensive and interprofessional guide aimed at all healthcare professionals working with children and young people with Congenital Heart Disease. Structured around the timeline of the patient's healthcare journey, this book explores the care of the patient from the point of presentation and diagnosis (whether that is antenatally, in the neonatal period or later) until there is a transition in the patient's healthcare journey either onto adult services, or in some cases, end of life. It considers all aspects of care that the child/young person may receive, supported in an evidence based manner, with chapters written by experts from a variety of professional groups involved with this patient group.
Contents
List of Contributors. Chapter 1 An overview of new ways of working for the 21st century.
Patient journeys.
E-based learning.
New ways of learning.
Usability and accessibility.
Flexibility.
Cost-effectiveness.
Changes in service and organisational effectiveness.
Interprofessional learning and collaborative practice.
Learning points from other higher education institutions.
Changes in health care.
Congenital Cardiac Services Workshop June 2006.
Advancing roles.
Conclusion.
References.
Chapter 2 Presentation and diagnosis.
Fetal diagnosis of congenital heart disease.
Neonatal presentations.
Unscheduled care.
Late presentations.
Cardiac arrhythmias and sudden death.
Cardiac investigations.
Summary.
References.
Websites.
Chapter 3 Treatment options/management.
Admission and preoperative preparation.
Medical/interventional treatment options.
Introduction to paediatric cardiac surgery.
Summary.
References.
Chapter 4 Impact of heart disease on young people and their families: an introduction.
How are 'outcomes' measured?
Quality of life - measurement issues.
The infant and toddler with congenital heart disease.
School-age children.
The adult with CHD - long-term physical and social issues.
The impact on the family.
Diversity and culture.
Conclusion.
References.
Website.
Chapter 5 What are 'communication skills'?
The changing climate.
Consent.
The 'explanatory' or 'exploratory' communication style.
An organisational research project.
The templates and the competency in interactive communication.
Child protection.
Ethical or communication issues?
Adolescents.
Summary.
References.
Chapter 6 Transition to Adult Services .
Preparation.
Logistics.
Psychological aspects of transition.
Support.
Summary.
References.
Websites.
Chapter 7 The information jigsaw.
The beginning of the journey.
Antenatal diagnosis.
The hospital experience.
Family relationships.
The next steps.
Bereavement.
Conclusion.
References.
Further reading.
Index.
