Full Description
Deciding with Children in Pediatrics: Children's Participation in Healthcare Decision-making provides the ethical underpinning and offers practical strategies to foster meaningful participation of children in decisions affecting their healthcare. It will assist clinicians to bring forward the perspectives and values of the child, ensuring their preferences are incorporated into decision-making or appropriately justified when this is not possible. This is to both improve healthcare delivery and serve the best interests of children— now and as decision-makers in the future.
This book reviews theories underpinning the concept of deciding with children and explores how pediatric decision-making is standardly managed. It then proposes a model for making healthcare decisions with children. A panel of experienced clinicians and ethicists demonstrate, via a series of case studies, how to promote children's participation across a variety of clinical areas, child ages, and developmental stages. It concludes with a review of questions, concerns, and challenges. Deciding with Children in Pediatrics: Children's Participation in Healthcare Decision-making helps bridge the gap between philosophy and practical clinical ethics and creates a frame of reference for children's healthcare providers.
Contents
1. Ethical theory and grounding
David Archard and Georgina Hall
2. Neurocognitive development and medical decision-making
Judah Ping Ern Teo, Nikita Tuli Sood, Carmen Pace, and Marc Seal
3. Psychosocial & contextual influences on children's healthcare participation
Lorraine Swords
4. Deciding with children: What is the evidence?
Imelda Coyne
5. Traditional approaches to child and adolescent decision-making
Lynn Gillam
6. Deciding with children: The model
John Massie and Sharon Feldman
7. Challenges and limits in deciding with children
Dominic Wilkinson
8. Decision-makirng with young children (including those with attention deficit hyperactivity disorder)
Daryl Efron and Rosalind Mcdougall
9. Decision-making with adolescents
Mick Creati and Douglas Diekema
10. Giving voice when no-one is listening. The role for nurses in deciding with children
Jenny O'Neill and Georgina Morley
11. Deciding with children when the stakes are high (oncology)
Molly Williams, Jayne Harrison and Tamara Zutlevics
12. Deciding with children-beyond disability
Giuliana Antolovich and Jennifer Kett
13. Giving voice: Allied health as supporters of children's decision-making
Charlotte Barr and Clare Delany
14. Deciding with children who know more than you. Cystic fibrosis as a chronic disease
Katherine Frayman and Bryanna Moore
15. Deciding with children--Surgery
Tony Penington and Joe Brierly
16. Deciding with children: Putting theory into practice
John Massie, Georgina Hall and Lynn Gillam
