Full Description
This is a timely book, given the increasing emphasis on user participation in both research and health and social service provision, that can be read in conjunction with a more general book on research..." David Hicks, Liverpool John Moores University, UKUser participation in research is still in its relative infancy with many practical, ethical, moral, methodological and philosophical questions unanswered. This text gathers together an international set of authors to explore these issues and begin to forge some practical solutions to each of these concerns. The book includes contributions on the use and application of narrative approaches, intervention and evaluation research, methodological development and quality thresholds. It provides a practical framework for all groups wishing to undertake research based on the principles and values of user participation.The book is structured around ten original case studies which explore the use of participatory methods in practice with a variety of groups across diverse health, social care and community settings. These include older people, including those with dementia, people with learning disability, mental health service users and their carers, and children and young people. Unique and often groundbreaking studies from Australia, Sweden, the UK, and the USA are used to illustrate application of theory to research practice. In addition the text:
Considers the issues, challenges and rewards of user participation research Draws on the actual experience of doing research and working with users Includes the voices and contributions of users in reporting research
User Participation in Health and Social Care Research: Voices, Values and Evaluation is key reading for students, researchers, practitioners and users themselves wishing to undertake participative research involving service users.
Contents
Dedication
AcknowledgementsIntroduction
What counts as knowledge, whose knowledge counts?: Towards authentic participatory inquiry
ACTION (Assisting Carers using Telematic Interventions to meet Older people's Needs): Practitioners' reflections on a Swedish innovation
Partnerships in best practice: Advancing gerontological care in Scotland
Changing the culture within care homes for older people
'A Changing Life': Co-constructing a personal theory of awareness and adjustment to the onset of Alzheimer's disease
Innovative approaches to living with dementia: An Australian case study
Looking in a fairground mirror: Reflections on partnerships in learning disability research
Doing user research: Narratives of mental health service user researchers
Carers of people with mental health problems as co-researchers: Reflections on the 'Partnerships in Carer Assessment Project' (PICAP)
Involving children, young people and parents in knowledge generation in health and social care research
Engaging community leaders and students in rural American community-based participatory research
Conclusions
Realising authentic participatory inquiry
References
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