基本説明
Covers practice, research and theory of the Expert Patient's Programme (EPP).
Full Description
The management of chronic disease and the contribution patients make to their own care is attracting widespread attention, nationally and internationally. A range of self-management courses have been developed by Kate Lorig and her team at Stanford University's Medical School since the early 1980s, some of which have now been implemented throughout England and across other parts of the UK. Designed for people with long-term health conditions, they are delivered by hundreds of agencies worldwide, and differentiate the concept of disease management (to be done by a health care professional) from the individual's management of life with a long-term condition (self-management).
This book explores how this work became valued within the NHS and local communities and also airs the arguments about the importance of lay leadership. It brings together those who have been instrumental in developing these courses, and assesses the value they hold for the different groups involved directly in them (participants, course trainers, staff), and those it will affect indirectly (GPs, nurses, policy makers, commissioners). The reader will find personal experience and accounts of the excitement in designing new work. Reflection on what happens to people attending courses is set alongside consideration of radical questions about the need for resilient communities. Next, the research reports are followed by considerations for policy makers and local agencies, voluntary and statutory. Finally, questions about the future direction and links to local communities are raised.
Contents
Foreword: Interview with Professor Kate Lorig ; 1. UK origins and arguments ; 2. The ideas and health context where self-management emerged ; 3. Participants views: ; Scottish Lowlands ; Tower Hamlets ; The Christie, Manchester ; 4. Advanced journeys into self-management: ; A personal journey ; The HOPE course ; Developing the staying positive programme for adolescents ; 5. The principles of lay leadership ; 6. Delivering courses now: ; Looking at the Expert Patients Programme ; The programme in Scotland ; Why we chose to get involved with self-management in Tower Hamlets ; Still questions after 15 years of experience ; The online opportunity ; Maintaining standards ; 7. The value of self-management: retrieving a sense of self: the loss and reconstruction of a life ; 8. Self-management and government policy ; 9. The business case for lay-led self-management ; 10. Implementing the pilot EPP ; 11. Self-management and public & patient involvement ; 12. The Expert Patient Programme community interest company: the future ; 13. Co-creating health: transforming healthcare systems ; 14. Three bodies of UK research: ; Coventry University Applied Research Centre ; The National Primary Care Research and Development Centre, Manchester ; Learning from co-creating health ; 15. What do we really know about benefits and value? ; 16. Which way is forward?
