Full Description
The importance of palliative care for children facing life threatening illness and their families is now widely acknowledged as an essential part of care, which should be available to all children and families, throughout the child's illness and at the end of life. The new edition of the Oxford Textbook of Palliative Care for Children brings together the most up to date information, current knowledge, evidence, and developments of clinical practice in the field.
The book is structured into four sections. 'Foundations of Care' describes core issues, the foundations on which paediatric palliative care is based. 'Child and Family Care' looks at different aspects of psychological, social, and cultural care for the sick child or young person, and their family. These chapters cover the time course of the illness, around the time of death and support for the bereaved family. 'Symptom Care' focuses on the uses of medication, specific symptoms, and their management. Finally, 'Delivery of Care' examines practical approaches to care in different environments and the needs of clinicians.
Two new editors join the team from Canada and South Africa, reflecting our aims to contribute towards the development of care for children across the world, and to be a resource for both experienced clinicians and those new to the field.
Comprehensive in scope, exhaustive in detail, and definitive in authority, this third edition has been thoroughly updated to cover new practices, current epidemiological data, and the evolving models that support the delivery of palliative medicine to children. This includes two new chapters, looking in detail at 'Decision Making' and 'Perinatal Care', and a new section highlighting the emerging importance of 'Palliative Care for Children in Humanitarian Crises'. This book is an essential resource for anyone who works with children worldwide.
Contents
Section I: Foundations of care 1: Lorna Fraser, Stephen Connor, and Joan Marston: History and epidemiology 2: Jennifer Mack and Bryan Sisk: Communication 3: Robert MacAuley and Richard Hain: Children are not little adults the distinctiveness of ethics in children 4: Myra Bluebond-Langner and Richard Langner: Decision making with children, young people and parents 5: Erica Brown, Mary Ann Muckaden, and Nokuzola Mndende: Culture, spirituality, religion, and ritual Section II: Child and family care 6: Nancy Contro and Jane Zimmerman: Assessment of the child and family 7: Myra Bluebond Langner and Ignasi Clemente: Children s views of death 8: Jan Aldridge and Barbara M Sourkes: The psychological impact of life-limiting conditions on the child 9: Chana Korenblum and Finella Craig: Adolescents and young adults 10: Amy Volans and Emma Brown: Children expressing themselves 11: Sue Boucher: Education and school 12: Veronica Dussell and Barbara Jones: Impact on the family 13: Sara Portnoy and Lori Ives Bain: Bereavement Section III: Symptom care 14: Dilini Rajapakse and Maggie Comac: Overview of symptoms and their assessment in life-limiting illness 15: Andy Gray, Jane Ridden, Richard Hain: Using medication in children s palliative care 16: Antoine Bioy and Chantal Wood: Introduction to pain 17: Stefan J. Friedrichsdorf: Multimodal analgesia in pediatric palliative care 18: Manuel Rigal, Ricardo Martino, and Richard Hain: Opioids and the WHO pain ladder 19: Renee McCulloch and Charles Berde: Difficult pain: adjuvants or co-analgesics 20: David Steinhorn: Integrative approach to pain and other symptoms 21: Jo Laddie, Alta Terblanche, and Michelle Meiring: Gastrointestinal and liver related symptoms in paediatric palliative care 22: Adam Rapoport,Sanjay Mahant and Michelle Meiring: Feeding, cachexia and malnutrition in children s palliative care 23: Julie M. Hauer and Jori Bogetz: Neurological and neuromuscular conditions and symptoms 24: Pamela J. Mosher and Anna C. Muriel: Depression, anxiety, and delirium 25: Emily Harrop and Roxanne Kirsch: Cardiorespiratory symptoms 26: Carol Hlela, Rene Albertyn, and Michelle Meiring: Skin symptoms 27: Mei-Yoke Chan and Kevin Weingarten: Haematological symptoms 28: Michelle Meiring and Tonya Arscott-Mills: Palliative care for children with communicable illnesses Section IV: Delivery of care 29: Áine Ni Laoire, Daniel Nuzum, Maeve O'Reilly, Marie Twomey, Keelin O Donoghue, and Mary Devins: Perinatal palliative care 30: Brian Carter: Intensive-care units 31: Michelle Grunauer and Jenny Hynson: Planning care 32: Dawn Davies and Justin Baker: Care in the final hours and days 33: Julia Downing and Joan Marston: Delivering care around the world 34: Danai Papadatou: Healthcare providers responses to the death of a child 35: Jan Aldridge and Pat Carragher: Teamwork 36: Fiona Rawlinson and Michelle Meiring: Education 37: Susan Blacker and Rachel Thienprayoon: Quality improvement in paediatric hospice and palliative care 38: Harold Siden and Kimberly Widger: Research in paediatric palliative care Appendix 1: The Association of Paediatric Palliative Medicine Master Formulary, Fifth Edition, 2020
