Full Description
Afflicting one in 83 Americans, Sjögren's is a serious and systemic autoimmune disease that, along with symptoms of extensive oral and ocular dryness, can lead to other serious complications including profound fatigue, chronic pain, major organ involvement, neuropathies and lymphoma. While there is no cure for Sjögren's, approaches exist to help manage and treat aspects of the disease, and this revised handbook offers everything readers need to understand and cope with their diagnosis.
The Sjögren's Book, Fifth Edition is a comprehensive and authoritative guide, produced by the Sjögren's Foundation and its medical advisors and edited by a leading authority on autoimmune disorders. This expanded edition provides readers with the best medical and practical information on this disease, bringing together current thinking about Sjögren's in an easily readable and understandable book and providing important new content on areas not covered in previous editions. With more than fifty chapters written by leading experts, this handbook illuminates the major clinical aspects of the disease and is loaded with practical tips and advice as well as scientific advancements in the field. Indeed, it offers a wide-ranging look at the many faces of Sjögren's, covering diagnosis, the many organ systems that can be affected, emotional burden and management, treatment options, and hope for the future.
Recognized as the bible for Sjögren's sufferers, this reliable and informative guide is the first place for patients to look when they have questions about this disabling disease. It is a valuable aid that patients can use while discussing their illness with their physician and an excellent resource for family members. Because Sjögren's is greatly underdiagnosed, this handbook is a particularly valuable resource for healthcare professionals.
Contents
CONTENTS
Contributors
Introduction: Why Write a Book on Sjögren's? by Daniel J. Wallace
PART ONE What is Sjögren's and Who is the Sjögren's Patient?
1. The Sjögren's Foundation: The Patients' and Professionals' Key Resource and Advocate
JANET E. CHURCH AND STEVEN TAYLOR
2. What is Sjögren's?
FREDERICK B. VIVINO
3. Who Develops Sjögren's?
CHRISTINE H. LEE AND DANIEL J. WALLACE
4. The Impact of Living with Sjögren's
MATTHEW MAKARA
5. The Cost of Living with Sjögren's
SIMON J. BOWMAN AND BENJAMIN FISHER
PART TWO The Science of Sjögren's
6. Sjögren's and the Immune System
ROBERT I. FOX AND STEVEN E. CARSONS
7. Environmental Effects
JEFFREY W. WILSON, PETER OLSSON AND THOMAS MANDL
8. Genetics and Sjögren's
KATHY L. SIVILS
9. The Gut Microbiome and Sjögren's
ANAT GALOR, KARA M CAVUOTO AND SANTANU BANERJEE
10. Causes of Exocrine Gland Dysfunction in Sjögren's
EFSTATHIA K. KAPSOGEORGOU, MICHAEL VOULGARELIS AND ATHANASIOS G. TZIOUFAS
PART THREE How is the Body Affected?
11. Diagnosis of Fatigue
DANIEL J. WALLACE, RICHA MISHRA AND FREDERICK B. VIVINO
12. Musculoskeletal Manifestations of Sjögren's
DONALD E. THOMAS JR
13. Sjögren's and Central Nervous System Disorders
ARUN VARADHACHARY
14. The Internal Organs in Sjögren's
R. HAL SCOFIELD, FOTINI C. SOLIOTIS, STUART S. KASSAN AND HARALAMPOS M. MOUTSOPOULOS
15. The Dry Mouth
AVA J. WU AND TROY E. DANIELS
16. The Dry Eye
CINTIA S. DE PAIVA, ABHA GULATI, REZA DANA AND GARY N. FOULKS
PART FOUR Diagnosis
17. Diagnostic and Classification Criteria for Sjögren's
MATTHEW MAKARA
18. Laboratory Tests
ALAN N. BAER
19. Assessing the Salivary Gland Component in Sjögren's: Biopsy & Imaging
MALIN V. JONSSON, KATHRINE SKARSTEIN AND CHIARA BALDINI
20. The Difficult-to-Diagnose Sjögren's Patient
ASTRID RASMUSSEN
21. Diseases Associated with Sjögren's
JANET LEWIS AND FREDERICK B. VIVINO
22. Childhood Sjögren's
SCOTT M. LIEBERMAN, SARA STERN AND JAY MEHTA
PART FIVE Managing Sjögren's
23. Management of Dry Eye
PETER DONSHIK
24. Management of Dry Mouth
VIDYA SANKAR
25. Management of Other Sicca Symptoms: Dry Ears, Nose & Sinuses
SOO KIM ABBOUD AND LEILA M. HADDAD
26. Vaginal Dryness in Sjögren's
JOLIEN F. VAN NIMWEGAN AND RITA MELKONIAN
27. Management of Chronic Musculoskeletal Pain
LAN CHEN
28. Management of Pulmonary Complications in Sjögren's
AUGUSTINE LEE
29. Management of Peripheral Nervous System Complications in Sjögren's
SHALINI MAHAJAN AND DANIEL J. WALLACE
30. Central Nervous System Complications in Sjögren's
PANTELIS P. PAVLAKIS, THERESA LAWRENCE FORD, JANET LEWIS, SHALINI MAHAJAN, STEVEN MANDEL AND DANIEL J. WALLACE
31. Cognitive Dysfunction and Central Nervous System Involvement in Sjögren's
EDWARD MAITZ AND STEPHEN MAITZ
32. Managing Fatigue
NANCY CARTERON
33. Depression and Anxiety in Sjögren's
VALERIE G. LOEHR AND E. SHERWOOD BROWN
34. Gastrointestinal Manifestations in Sjögren's
KATERINA SHETLER
35. Gynecological and Urological Aspects of Sjögren's
RITA MELKONIAN
36. Vasculitis in Sjögren's
GHAITH NOAISEH
37. Lymphoma and Other Cancer in Sjögren's
KIERON DUNLEAVY & KATHERINE M. HAMMITT
38. Hepatic and Pancreatic Involvement in Sjögren's
CHADWICK R. JOHR
39. Kidney-Associated Involvement in Sjögren's
DANIEL J. WALLACE
40. Complementary, Alternative & Integrative Approaches to Health
MATTHEW MAKARA
41. Vitamin D and Sjögren's
JEFFREY W. WILSON
PART SIX Taking Charge of Your Sjögren's
42. Sjögren's: The Self and Others
TERI P. RUMPF AND LYNN C. EPSTEIN
43. Enhancing Resilience Through Mind-Body Interactions
MARGARET BAIM
44. Sleep Disorders
H. KENNETH FISHER AND DANIEL J. WALLACE
45. Sex and Sjögren's
ANNE E. BURKE
46. Vaccinations in Sjögren's
RICHARD BRASINGTON
47. Disability
THOMAS D. SUTTON AND KATHERINE M. HAMMITT
PART SEVEN The Future
48. Recent and Promising Scientific Developments
STEVEN E. CARSONS, MABI SINGH, NANCY MCNAMARA AND KATHERINE M. HAMMITT
49. The Sjögren's Foundation Clinical Trials Consortium
THERESA LAWRENCE FORD
50. Clinical Trials: What they are, how to get Involved and the Current State in Sjögren's
MATTHEW MAKRA AND DANIEL J. WALLACE
51. International Collaboration and the Information Technology that Fuels it: Keys to a Brighter Future
KATHERINE M. HAMMITT
