Full Description
Genetic counseling is one of the fastest growing fields across clinical care, medical research, and health-related industries. This growth is driven by advancements in genetic knowledge, the expansion of genetic tests and sequencing tools, industry demands for new testing modalities, and a public interest in direct-to-consumer genetic testing.
As the field continues to expand and diversify, The Oxford Handbook of Genetic Counseling is the most comprehensive and authoritative resource designed to meet the demands of a growing workforce. The volume contains thirty-six chapters that cover historic developments, application in clinical practice, research and industry, and genetic and genomic testing. The book also discusses ethical and social issues and provides an outlook on the future of the field.
Bringing together an interdisciplinary team that includes genetic counselors, clinical geneticists, medical researchers, bioethicists, legal and policy experts, and other healthcare professionals, this volume is an invaluable resource for professionals in the field. It appeals to genetic counselors, genetic counseling students, teachers, scholars, and bioethicists. Given its scope and diversity of topics, it is also an important resource for clinical faculty, health researchers, and healthcare providers who are increasingly encountering genetics and genomics in their respective fields.
Contents
Contributors
Preface
Acknowledgments
Part I: The Emergence and Establishment of the Genetic Counseling Profession
1 - Negotiating Heredity, Choice, and Coercion: A Gendered History of Genetic Counseling and Reproductive Advice, 1910-1960
Devon Stillwell
2 - The Development of Education for Genetic Counselors
Bonnie Jeanne Baty and Claire Davis
3 - The Professionalization of Genetic Counseling
Vickie L. Venne and Edward M. Kloza
Part II: Engaging in the Practice of Genetic Counseling
4 - A Theory of Responsive Genetic Counseling Practice
Robin E. Grubs and Maria Piantanida
5 - The Reciprocal-Engagement Model of Genetic Counseling Practice
Patricia McCarthy Veach and Bonnie S. LeRoy
6 - New Perspective in Psychosocial Genetic Counseling
Jon Weil
Part III: Contexts of Genetic Counseling Practice
7 - Prenatal Genetic Counseling
Sandra A. Darilek and Jennifer Hoskovec
8 - Pediatric Genetic Counseling
Carol S. Walton
9 - Cancer Genetic Counseling
Stephanie A. Cohen
10 - Specialization and Sub-Specialization in Genetic Counseling: Trends and Drivers
Catherine A. Wicklund and Angela M. Trepanier
11 - The Genetic Counselor's Role in Direct-to-Consumer Genetic Testing
Anne E. Greb
12 - Genetic Counselors as Researchers
Julia Wynn and Tara Schmidlen
13 - Genetic Counselors in Marketing and Industry
Elissa Levin and Edgar MacBean
14 - Genetic Counseling Approaches for Adolescents and Young Adults
Melanie F. Myers and Wendy R. Uhlmann
Part IV: Navigating Contemporary Issues in Genetic Testing and Genetic Counseling Practice
15 - Considerations Before Testing: Patient Education, Decision Making and Informed Consent
Kelly E. Ormond
16 - Testing Strategies: Navigating the Path of Genetic Testing
Lee A. Zellmer and Emily G. Farrow
17 - After the Test: Interpreting a Clinical Report
Isabelle Thiffault and Carol J. Saunders
18 - Genetic Counselor Liability and Licensure in the Genomics Era
Susan M. Wolf, Gary E. Marchant, Hannah M. Oliason, Bonnie S. LeRoy
19 - Family History in Contemporary Genetics
Debra L. Collins and Devin M. Cox
20 - Common and Complex Traits: Considerations for Genetic Counseling
Eleanor Feingold
21 - Risk Assessment of Secondary Findings
Eric T. Rush
22 - Genetics and Genetic Counseling in the Internet Age
Lauren Gallagher and Leslie Ordal
Part V: Normative Concepts and Ethical Issues in Genetic Counseling
23 - Nondirectiveness in Genetic Counseling: Conceptual and Normative Dimensions
Michael J. Deem
24 - Communicating Family Information in Genetic Counseling: An Ethical Perspective
Samantha J. Leonard and Ainsley J. Newson
25 - Genetic Counselors' Personal Reactions and the Ethical Implications for Genetic Counseling Practice
Patricia McCarthy Veach and Krista Redlinger-Grosse
26 - Ethical and Social Issues Connected to Genetic Testing of Fetuses, Infants, and Children
Dena S. Davis
27 - Genetic Counseling and the Problem of Exploitation
Naomi Scheinerman
28 - Precision Medicine's Ethical Challenges: Roles for Genetic Counselors
Lisa S. Parker
Part VI: Culture, Disability, and the Social Effects of Genetic Counseling
29 - Cultural Responsiveness and Linguistic Competence in Genetic Counseling:
Taking Responsibility
Nancy Steinberg Warren
30 - Genetic Counseling Outcomes, Patient Empowerment, and the Genetic Counseling Outcome Scale
Marion McAllister
31 - Reforming Informed Consent: On Disability and Genetic Counseling
Elizabeth Dietz and Joel Michael Reynolds
32 - Genetics and Disadvantage: Inequity, Stigma, and Expectation
Angus Clarke
Part VII: The Future of Genetic Counseling
33 - Anticipating the Growth of Genetic Counseling
Megan E. Trinkle-Tucker and Beverly M. Yashar
34 - Globalization of Genetic Counseling
Mercy Ygoña Laurino and Austin E. Bland
35 - Growing Up with Genomes: Ethical and Practical Considerations of Prenatal and Postnatal Genomic Sequencing
Marsha Michie and Aaron J. Goldenberg
36 - Considering the Future of Genetic Counseling
Deborah Cragun, Robert Resta, and Daniel Lee Riconda
