Full Description
Congenital Heart Disease and Neurodevelopment: Understanding and Improving Outcomes brings together the work of leading researchers from the U.K., Europe, and the U.S. to provide a comprehensive examination of the causes, risks, and neurodevelopmental and psychological outcomes in children with congenital heart disease. The book includes longitudinal studies which have tracked outcomes from birth through late childhood and explores the emergent phenotype and etiologies, risk, and protective factors that strengthen proposed models.
Medical and surgical advances have meant that greater numbers of children with even the most severe congenital heart disease (CHD) now survive well into adulthood. Studies over the past 20 years have suggested certain neurodevelopmental and psychological features are common, with clinical interventions being internationally articulated. The U.K. Belfast Center has developed and evaluated unique early intervention programs to circumvent the common problems discerned and promote optimal adjustment and outcomes. The first edition of Congenital Heart Disease and Neurodevelopment: Understanding and Improving Outcomes describes these programs in detail and outlines promising results obtained by researchers worldwide. Such interventions, together with the U.S. consensus statement (Circulation, 2012) on neurodevelopmental screening, hold great promise for clinical interventions.
Contents
Part I: Hearts and Minds
1. Congenital Heart Disease: The Evolution of Diagnosis, Treatments and Outcomes
Frank Casey
2. Historical Perspectives in Pediatric Psychology and Congenital Heart Disease
Nichola Rooney
Part II: Towards a Neurodevelopmental Phenotype
3. A Longitudinal Study from Infancy to Adolescence of the Neurodevelopmental Phenotype Associated with d-Transposition of the Great Arteries
David C. Bellinger and Jane W. Newburger
4. Neurodevelopmental Patterns in Congenital Heart Disease across Childhood - Longitudinal Studies from Europe
Hedwig H. Hövels-Gürich and Christopher McCusker
5. An Emergent Phenotype: A Critical Review of Neurodevelopmental Outcomes for Complex Congenital Heart Disease Survivors During Infancy, Childhood, and Adolescence
Maria Kharitonova and Bradley S. Marino
Part III: Psychological profiles and processes
6. Is There a Behavioural Phenotype for Children with Congenital Heart Disease?
Christopher McCusker and Frank Casey
7. A Family Affair
Nicola Doherty and Elisabeth Utens
8. The Adult with Congenital Heart Disease
Danielle Emily Katz, Maria Chaparro and Adrienne Kovacs
Part IV: Interventions
9. The Congenital Heart Disease Intervention Programme (CHIP) and Interventions in Infancy
Nicola Doherty and Christopher McCusker
10. Growing up - Interventions in Childhood
Christopher McCusker
11. Healthy Teenagers and Adults - An Activity Intervention
Margaret Louise Morrison and Frank Casey
12. Conclusions and Future Directions for Neurodevelopmental Research and Interventions in Congenital Heart Disease
Christopher McCusker
