Childhood Cancer : A Parents Guide to Solid Tumor Cancers (Patient-centered Guides) (2ND)

Childhood Cancer : A Parents Guide to Solid Tumor Cancers (Patient-centered Guides) (2ND)

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  • 製本 Paperback:紙装版/ペーパーバック版/ページ数 537 p.
  • 言語 ENG,ENG
  • 商品コード 9780596500146
  • DDC分類 618.92994

Full Description


This second edition of this complete parent guide features detailed and precise medical information about solid tumour childhood cancers, including neuroblastoma, Wilms tumour, liver tumours, soft tissue sarcomas, and bone sarcomas. In addition, it offers day-to-day practical advice on how to cope with procedures, hospitalization, family and friends, school, social and financial issues, communication, feelings, and, if therapy is not successful, the difficult issues of death and bereavement. Woven among the medical details and the practical advice are the voices of parents and children who have lived with cancer and its treatments. As many parents have already found, advice from "veteran" parents can be a lifeline. Obtaining a basic understanding of topics such as medical terminology, how drugs work, common side effects of chemotherapy, and how to work more effectively with medical personnel can only improve the quality of life for the whole family suffering along with their child. Having parents describe their own emotional ups and downs, how they coped, and how they molded their family life around hospitalizations can be a tremendous comfort.Just knowing that there are other kids on chemotherapy who refuse to eat anything but tacos or who have frequent rages can make one feel less alone. Parents who read this book will encounter medical facts simply explained, advice to ease their daily lives, and tools to be strong advocates for their child. It also contains a personal treatment summary and long-term follow-up guide for your child to keep as a permanent record.

Table of Contents

Foreword                                           xi
Introduction xiii
Diagnosis 1 (11)
Signs and symptoms 1 (1)
Where should your child receive treatment? 2 (1)
Physical responses 3 (1)
Emotional responses 3 (7)
The immediate future 10 (2)
Coping with Procedures 12 (29)
Planning for procedures 12 (3)
Pain management 15 (5)
Procedures 20 (21)
Family and Friends 41 (26)
The extended family 41 (2)
Grandparents 43 (4)
Friends 47 (11)
Restructuring family life 58 (9)
Forming a Partnership with the Medical Team 67 (16)
The hospital 67 (2)
Finding an oncologist 69 (1)
Choosing a hospital 70 (1)
Types of relationships 71 (2)
Communication 73 (4)
Getting a second opinion 77 (1)
Conflict resolution 78 (2)
Changing doctors 80 (3)
Clinical Trials 83 (13)
Enrollment in clinical trials 83 (1)
Standard treatment 84 (1)
Types of clinical trials 84 (1)
Randomization 85 (1)
Design of clinical trials 86 (1)
Supervision of clinical trials 87 (1)
Questions to ask about clinical trials 87 (1)
Informed consent 88 (2)
Assent 90 (1)
The protocol 91 (2)
The entire trial document 93 (1)
Saying no to a clinical trial 94 (1)
Removing a child from a clinical trial 94 (1)
Points to ponder 94 (2)
Venous Catheters 96 (18)
External catheter 96 (6)
Subcutaneous port 102 (4)
Peripherally inserted central catheters 106 (3)
Cost 109 (1)
Choosing not to use a catheter 110 (1)
Making a decision 110 (2)
Adhesives 112 (2)
Hospitalization 114 (10)
The room 114 (2)
Food 116 (1)
Parking 117 (1)
The endless waiting 117 (2)
Befriending the staff 119 (1)
Being an advocate for your child 119 (3)
Playing 122 (2)
Neuroblastoma 124 (13)
The sympathetic nervous system 124 (1)
Who gets neuroblastoma? 125 (1)
Signs and symptoms 126 (1)
Diagnosis 127 (3)
Treatment 130 (7)
Wilms Tumor 137 (13)
The kidneys 137 (1)
Who gets Wilms tumor? 138 (2)
Signs and symptoms 140 (1)
Diagnosis 141 (2)
Treatment 143 (4)
Other types of childhood kidney cancers 147 (3)
Soft Tissue Sarcomas 150 (14)
Muscles and connective tissues 150 (1)
Rhabdomyosarcoma 151 (1)
Who gets rhabdomyosarcoma? 152 (1)
Rhabdomyosarcoma signs and symptoms 153 (1)
Diagnosis of rhabdomyosarcoma 154 (3)
Treatment of rhabdomyosarcoma 157 (3)
Other soft tissue sarcomas 160 (3)
Newest treatment options 163 (1)
Bone Sarcomas 164 (18)
The skeletal system 164 (1)
Osteosarcoma 165 (1)
Who gets osteosarcoma? 165 (1)
Osteosarcoma signs and symptoms 166 (1)
Diagnosis of osteosarcoma 167 (2)
Treatment of osteosarcoma 169 (5)
Ewing's sarcoma family of tumors 174 (2)
Diagnosis of ESFT 176 (1)
Treatment of ESFT 177 (5)
Liver Cancers 182 (11)
The liver 182 (2)
Who gets liver cancer? 184 (1)
Signs and symptoms 185 (1)
Diagnosis 185 (1)
Staging 186 (1)
Prognostic indicators 187 (1)
Treatment 188 (5)
Retinoblastoma 193 (13)
The eye 193 (1)
Who gets retinoblastoma? 194 (3)
Signs and symptoms 197 (1)
Diagnosis and staging 198 (1)
Prognosis 199 (1)
Treatment 200 (6)
Sources of Support 206 (17)
Hospital social workers 206 (2)
Support groups for parents 208 (2)
Support groups for children with cancer 210 (1)
Support groups for siblings 211 (1)
Parent-to-parent programs 211 (1)
Hospital resource rooms 212 (1)
Clergy and religious community 213 (1)
Individual and family counseling 214 (6)
Camps 220 (3)
Chemotherapy 223 (37)
How chemotherapy drugs work 223 (1)
How chemotherapy drugs are given 224 (1)
Dosages 225 (1)
Chemotherapy drugs and their possible side 225 (21)
effects
Colony-stimulating factors 246 (1)
Antinausea drugs used during chemotherapy 247 (4)
Drugs used to relieve pain 251 (5)
Adjunctive treatments 256 (1)
Alternative treatments 256 (4)
Common Side Effects of Chemotherapy 260 (23)
Hair loss 260 (3)
Nausea and vomiting 263 (2)
Low blood counts 265 (7)
Diarrhea 272 (1)
Constipation 273 (2)
Fatigue and weakness 275 (2)
Bed wetting 277 (1)
Dental problems 278 (1)
Mouth and throat sores 279 (1)
Changes in taste and smell 280 (1)
Skin and nail problems 281 (1)
Learning disabilities 282 (1)
Eating problems 282 (1)
Radiation Therapy 283 (14)
Radiation 283 (1)
Children who need radiation therapy 284 (1)
Questions to ask about radiation therapy 284 (1)
Radiation therapy schedules 285 (1)
Radiation therapy facilities 285 (1)
Radiation oncologist 285 (1)
Radiation therapist 286 (1)
Immobilization devices 286 (2)
Sedation 288 (1)
Types of radiation treatments 289 (5)
Possible short-term side effects 294 (1)
Possible long-term side effects 295 (2)
Surgery 297 (9)
Types of surgery 297 (3)
Presurgical evaluation 300 (2)
Anesthesia 302 (1)
The surgery 303 (1)
Discharge 304 (2)
Bone Marrow and Stem Cell Transplantation 306 (18)
Children who need transplants 306 (1)
Types of transplants 307 (4)
Choosing a transplant center 311 (2)
Paying for the transplant 313 (2)
The transplant 315 (1)
Emotional responses 316 (1)
Complications 317 (3)
Long-term side effects 320 (4)
Record Keeping and Finances 324 (17)
Keeping medical records 324 (4)
Keeping financial records 328 (5)
Coping with insurance 333 (3)
Sources of financial assistance 336 (5)
Nutrition 341 (18)
Treatment side effects and eating 341 (3)
A balanced diet 344 (2)
Vitamin supplements 346 (1)
Making eating fun and nutritious 346 (6)
What kids really eat 352 (1)
Parent advice 353 (1)
Commercial nutritional supplements 354 (2)
Feeding by tube and IV 356 (3)
School 359 (24)
Keeping the school informed 359 (1)
Keeping teacher and classmates involved 360 (1)
Keeping up with schoolwork 361 (1)
Siblings need help, too 362 (1)
Returning to school 363 (4)
Avoiding communicable diseases 367 (1)
Preschoolers 367 (2)
Identifying cognitive late effects 369 (10)
Record keeping 379 (1)
On accepting disabilities 380 (1)
The terminally ill child and school 380 (3)
Siblings 383 (18)
Telling the sibling 383 (1)
Emotional responses of the siblings 384 (5)
Sibling experiences 389 (7)
Helping siblings cope 396 (3)
Positive outcomes for the siblings 399 (2)
Feelings, Communication, and Behavior 401 (21)
Feelings 401 (2)
Communication 403 (3)
Common behavioral changes of children 406 (5)
Common behavioral changes of parents 411 (5)
Improving communication and discipline 416 (4)
Checklist for parenting stressed children 420 (2)
End of Treatment and Beyond 422 (17)
Emotions 422 (1)
Last day of treatment 423 (1)
Catheter removal 423 (2)
Ceremonies 425 (2)
What is normal? 427 (3)
Follow-up care 430 (1)
Survivorship 431 (3)
Employment 434 (2)
The military 436 (1)
Insurance 436 (3)
Relapse 439 (8)
Signs and symptoms 439 (2)
Emotional responses 441 (1)
Deciding on a treatment plan 442 (5)
Death and Bereavement 447 (74)
Transitioning from active treatment 447 (3)
Supportive care 450 (1)
Dying in the hospital 451 (2)
Dying at home 453 (1)
Siblings 454 (1)
The funeral 454 (2)
The role of family and friends 456 (6)
Sibling grief 462 (1)
Parental grief 463 (4)
Looking back after many years 467 (2)
Appendices
A. Photographs of Our Children 469 (7)
B. Blood Counts and What They Mean 476 (8)
C. Resource Organizations 484 (17)
D. Books, Online Sites, and Videotapes 501 (20)
Index 521