This ethnography by a noted anthropologist is a book about transformation, about the meanings mothers of 'imperfect' children give to motherhood and disability in an age in which infants are commodified and technology seems to hold out the promise of 'perfect' babies.
Examining mothers of newly diagnosed disabled children within the context of new reproductive technologies and the discourse of choice, this book uses anthropology and disability studies to revise the concept of "normal" and to establish a social environment in which the expression of full lives will prevail.
Table of Contents
1 Introduction 1 (14)
2 Doing Everything Right: Choice, Control, 15 (34)
3 Diminished Motherhood 49 (42)
4 Mothers, Doctors, and Developmental 91 (52)
Delays: On Denial, Personhood, and the
Emplotment of Children's Lives
5 The Child as Giver: Mothers' Critique of 143(28)
the Commodification of Babies
6 On Mothering, Models, and Disability 171(44)
Epilogue: Personal Reflections 215(3)
Appendix: Profiles of Interview Participants 218(21)